Hugo Carina Jacobie, van der Merwe Mariette
a At the time of research - MA Psychology student, Centre for Child, Youth and Family Studies , Faculty of Health Sciences, North-West University , Potchefstroom.
J Child Adolesc Ment Health. 2014;26(3):177-91. doi: 10.2989/17280583.2014.898643.
This qualitative case study explored risk factors and protective factors in the bio-psychosocial fields of adolescents living with cystic fibrosis (CF).
Semi-structured interviews were conducted with adolescents in the middle and late adolescent years (15-22 years) who had the defining characteristics of CF and were living in Gauteng province.
Themes emerged from individual interviews. The fundamental human need to be understood and to understand was negatively affected as the illness affected socialisation and learning. Participants experienced an array of emotions including loss and bereavement linked to their illness and when friends with CF died. Constructive internal dialogue and positive thinking emerged as protective variables. Participants generally showed awareness of how they regulated their contact with the illness and how they self-regulate. Despite the severity of their symptoms and the taxing demands of managing CF, participants expressed hope for the future and could find some meaning in the illness.
Adolescents with CF who participated in this study indicated that they felt different from their peers. Apart from the general developmental tasks typical to adolescence they faced the challenge of managing a severe chronic and potentially terminal illness.
本定性案例研究探讨了患有囊性纤维化（CF）的青少年在生物心理社会领域的风险因素和保护因素。
对年龄在青少年中期和晚期（15 - 22岁）、具有CF典型特征且生活在豪登省的青少年进行了半结构化访谈。
从个体访谈中提炼出了一些主题。随着疾病影响社交和学习，被理解和理解他人这种基本的人类需求受到了负面影响。参与者经历了一系列情绪，包括与疾病以及CF病友死亡相关的失落和悲痛。建设性的内心对话和积极思考成为保护变量。参与者普遍表现出对自身如何调节与疾病的接触以及如何自我调节的认知。尽管症状严重且管理CF的要求繁重，但参与者仍对未来充满希望，并能从疾病中找到一些意义。
参与本研究的患有CF的青少年表示，他们觉得自己与同龄人不同。除了青少年典型的一般发展任务外，他们还面临着管理严重慢性且可能致命疾病的挑战。
