Beauger Davy, Gentile Stéphanie, Jacquelinet Christian, Dussol Bertrand, Briançon Serge
Laboratoire de santé publique, SPMC EA3279, Aix-Marseille université, 13385 Marseille, France; Service de santé publique et information médicale, hôpital de la Conception, 13005 Marseille, France.
Laboratoire de santé publique, SPMC EA3279, Aix-Marseille université, 13385 Marseille, France; Service de santé publique et information médicale, hôpital de la Conception, 13005 Marseille, France.
Nephrol Ther. 2015 Apr;11(2):88-96. doi: 10.1016/j.nephro.2014.10.003. Epub 2014 Nov 4.
The Epidemiology Network and Nephrology Information provides since 2001 the epidemiological monitoring of end stage renal disease (ESRD) in France. Two cross-sectional studies to estimate the level of quality of life in ESRD patients were performed in 2005 and 2007 and repeated in 2011. The main objective is to analyze the evolution of the quality of life of ESRD between these two surveys.
The studies were conducted on a representative sample of subjects aged 18 and over, prevalent dialysis or holders of a functioning kidney transplant last year, followed in center dialysis and/or transplantation in one of the eight French regions selected. The quality of life was measured by a generic questionnaire, and two specifics questionnaires.
The evolution of the quality of life deteriorated slightly between 2005-2007 and 2011. There is however few dimensions affected. The variation in scores is not meaningful in general, with maximum decreases less than 4 points according to the statistical methods used. This diminution is not clinically significant.
The quality of life in dialysis patients or transplant did not evolve between 2005-2007 and 2011. Currently, it is difficult to assess the benefits of the national plan for improving the quality of life of people with chronic diseases because the last data are too close to the end of the plan.
自2001年起，流行病学网络与肾脏病信息部门对法国终末期肾病（ESRD）进行流行病学监测。2005年和2007年开展了两项横断面研究以评估ESRD患者的生活质量水平，并于2011年重复进行。主要目的是分析这两次调查之间ESRD患者生活质量的变化情况。
研究对象为年龄在18岁及以上的具有代表性的样本，这些人去年接受过透析治疗或拥有正常功能的肾移植，在法国选定的八个地区之一的中心接受透析和/或移植治疗。生活质量通过一份通用问卷和两份特定问卷进行测量。
2005 - 2007年至2011年期间，生活质量略有下降。然而，受影响的维度较少。根据所使用的统计方法，分数变化总体上并无显著意义，最大降幅小于4分。这种下降在临床上并不显著。
2005 - 2007年至2011年期间，透析患者或移植患者的生活质量没有变化。目前，由于最新数据距离国家改善慢性病患者生活质量计划结束时间过近，难以评估该计划的成效。
