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被遗忘的群体:患有致残性慢性疼痛的父母所养育子女面临的挑战与需求

The forgotten ones: challenges and needs of children living with disabling parental chronic pain.

作者信息

Umberger Wendy A, Risko Judy, Covington Edward

机构信息

College of Nursing, Kent State University, Kent, OH.

School of Nursing and Health Sciences, Malone University, Canton, OH.

出版信息

J Pediatr Nurs. 2015 May-Jun;30(3):498-507. doi: 10.1016/j.pedn.2014.12.003. Epub 2014 Dec 31.

Abstract

A qualitative study explored the challenges and needs of children living with parental chronic pain. Young adult children (n=30) of parents with chronic pain were interviewed. Parents (n=20) with chronic pain participated in four focus groups. Content analysis yielded five categories of child challenges: (a) understanding the big picture; (b) enduring hardships; (c) grieving losses; (d) communicating with parent, and; (e) isolating self from peers. Three categories of child needs emerged: (a) knowledge; (b) skills, and; (c) supervised interaction. Understanding these challenges and needs is a vital step in the process of developing evidence-based interventions for this at-risk group.

摘要

一项定性研究探讨了患有慢性疼痛的父母的子女所面临的挑战和需求。对患有慢性疼痛的父母的成年子女(n = 30)进行了访谈。患有慢性疼痛的父母(n = 20)参加了四个焦点小组。内容分析得出了儿童面临的五类挑战:(a)了解全局;(b)忍受艰辛;(c)承受损失;(d)与父母沟通,以及(e)与同龄人隔离。出现了儿童的三类需求:(a)知识;(b)技能,以及(c)有监督的互动。了解这些挑战和需求是为这一高危群体制定循证干预措施过程中的关键一步。

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