Yang Xue, Byrne Victoria, Chiu Marcus Y L
Department of Psychology, The Chinese University of Hong Kong, Hong Kong, Hong Kong.
Centre for Research in the Social Sciences, University of Huddersfield, Huddersfield, UK.
J Appl Res Intellect Disabil. 2016 Jan;29(1):46-57. doi: 10.1111/jar.12157. Epub 2015 Mar 5.
By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued.
Data were collected through the qualitative methods of interviews and observations among a purposive sample of 15 parents of children with intellectual disabilities in central China.
The central idea emerging from the data encompassed five broad categories of caregiving experiences: (i) unavoidable caregiving responsibility and (ii) uncertain future as the greatest worries which are the perception towards the recipient; (iii) compromising quality of life and (iv) positive roles of caregiving tasks which focus on the self; and (v) community support which is the perceived support from the external system.
A recursive relationship existed among these categories. Chinese culture and traditional beliefs dominated throughout these issues. The implications and limitations of this study were discussed.
本研究采用扎根理论方法，试图填补一项空白，即在中国，公共支持不足且高度重视家庭责任的情况下，很少有研究探讨家庭照顾者的观点。
通过对中国中部15名智障儿童家长的目的抽样，采用访谈和观察的定性方法收集数据。
数据中出现的核心观点包括五大类照顾经历：（i）不可避免的照顾责任；（ii）对接受照顾者的认知中，不确定的未来是最大担忧；（iii）生活质量的妥协；（iv）关注自身的照顾任务的积极作用；（v）社区支持，即来自外部系统的感知支持。
这些类别之间存在递归关系。中国文化和传统观念在这些问题中占据主导地位。讨论了本研究的意义和局限性。
