Johansson Maria, Hanson Elizabeth, Runeson Ingrid, Wåhlin Ingrid
Intensive Care Department, County Hospital, Kalmar, Sweden; Department of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden.
Department of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden; School of Nursing & Midwifery, Sheffield S1 4DP, UK.
Intensive Crit Care Nurs. 2015 Aug;31(4):241-9. doi: 10.1016/j.iccn.2014.11.002. Epub 2015 Mar 6.
The aim of the study was to explore family members' experiences with keeping a diary during a sick relative's stay in the ICU.
A qualitative method with a hermeneutic approach was used. Eleven participants, who recorded nine diaries in total, were interviewed. The collected data were analysed using a hermeneutic approach inspired by Gadamer.
The analysis revealed a meta-theme: 'it [writing in the diary] felt like contact' which was created by a feeling of togetherness and the opportunity to communicate with the patient. Keeping a diary likely meets the needs of family members in several ways because it becomes a way to be present at the patient's bedsides, to provide caregiving, to maintain hope and to relay cogent information. However, concerns regarding negative aspects of diary keeping were also raised; for example, the diary created feelings of stress, guilt and failure and exposed intimate details.
The diary symbolised the maintenance of relationships with the patients and was a substitute for the usual opportunities for communication. Furthermore, it was instrumental in meeting the needs of the majority of family members in several ways. Nevertheless, the diary did have negative effects for certain individuals, which highlights the importance of an individualised approach.
本研究旨在探讨家庭成员在患病亲属入住重症监护病房（ICU）期间写日记的经历。
采用诠释学方法的定性研究。对11名参与者进行了访谈，他们共记录了9本日记。采用受伽达默尔启发的诠释学方法对收集到的数据进行分析。
分析揭示了一个元主题：“写日记感觉像是一种联系”，这种联系源于一种团聚感以及与患者交流的机会。写日记可能通过多种方式满足家庭成员的需求，因为它成为了一种在患者床边陪伴、提供护理、维持希望以及传递确切信息的方式。然而，也有人提出了关于写日记负面影响的担忧；例如，日记会产生压力、内疚和失败感，并暴露隐私细节。
日记象征着与患者关系的维系，是日常交流机会的一种替代。此外，它在多个方面有助于满足大多数家庭成员的需求。然而，日记对某些个体确实有负面影响，这凸显了个性化方法的重要性。
