Department of Anaesthesiology, Regional Hospital Holstebro, Lægårdvej 12, 7500 Holstebro, Denmark.
University of Copenhagen, Health and Medical Sciences, Blegdamsvej 3B, 2200 Copenhagen N, Denmark; Intensive Care Unit 4131, Rigshospitalet, Blegdamsvej 9, 2100 Copenhagen Ø, Denmark.
Intensive Crit Care Nurs. 2019 Dec;55:102751. doi: 10.1016/j.iccn.2019.08.001. Epub 2019 Aug 12.
To explore patients' perceptions of an intensive care unit diary written by relatives including pictures added by staff.
Ten patients were interviewed 3-6 and 8-16 months after discharge from the intensive care unit. Most patients were interviewed with a relative present. Interviews were analysed using Ricoeur's theory of interpretation.
Interviews took place in participants' homes.
Patients found the diary written by relatives with photos taken by staff to be valuable providing information that helped them understand their time in the intensive care unit. The diary text gave patients insight into relatives' experiences and suffering. Patients were touched by the love and care conveyed in the diary, however, the diaries could overwhelm the patients when they were confronted with the grief and agony endured by their relatives.
Although diaries kept by relatives confront patients with consequences beyond their own suffering, they are informative and promote understanding of what patient and family experienced during critical illness. The diaries expressed how much the relatives cared for the patient thus paving the way for mutual support and understanding. Diaries authored by relatives represent a new element to ICU diaries that have evolved from a nursing intervention toward family participation.
探讨患者对由亲属书写并附有医护人员添加的图片的重症监护病房日记的看法。
10 名患者在重症监护病房出院后 3-6 个月和 8-16 个月接受了访谈。大多数患者在有亲属在场的情况下接受了访谈。使用 Ricoeur 的解释理论对访谈进行了分析。
访谈在参与者的家中进行。
患者发现由亲属书写并附有医护人员拍摄的照片的日记很有价值，提供了有助于他们了解自己在重症监护病房经历的信息。日记文本让患者了解了亲属的经历和痛苦。患者被日记中传达的爱和关怀所感动，但当他们面对亲属所经历的悲痛和痛苦时，日记可能会让他们感到不知所措。
尽管亲属撰写的日记让患者直面自己所遭受痛苦之外的后果，但它们具有信息性，并促进了对患者和家属在危急疾病期间经历的理解。日记表达了亲属对患者的关心，从而为相互支持和理解铺平了道路。由亲属撰写的日记代表了重症监护病房日记演变的一个新元素，从护理干预演变为家庭参与。
