Sparud-Lundin Carina, Hallström Inger
University of Gothenburg, Göteborg, Sweden
Lund University, Lund, Sweden.
Qual Health Res. 2016 Aug;26(10):1331-40. doi: 10.1177/1049732315575317. Epub 2015 Mar 11.
Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The transition to home was followed by a gradual discharge, which included contradictory feelings, ambivalence, and hesitation and also being prepared and ready for facing daily life. The core category depicts differences regarding the degree of family participation, from passive to more active participants in initial diabetes management.
为支持那些孩子刚被诊断出患有糖尿病的家庭进行糖尿病管理，提供了各种护理方法。我们对23名新诊断为1型糖尿病儿童的36位家长进行了定性访谈。这些家长是从一项评估医院护理（HBC）和医院居家护理（HBHC）的随机对照试验（RCT）的参与者中招募而来的，以探究他们对两种不同糖尿病护理方法的体验。HBC被认为是安全的，但不是以家庭或糖尿病为导向的。HBHC被描述为一个轻松的环境，提供个性化的便利以及情境学习的机会，并且被认为更灵活，能促进正常化和参与度。向家庭护理的过渡伴随着逐步出院，这其中包括矛盾的情绪、矛盾心理和犹豫，同时也为面对日常生活做好准备。核心类别描述了在初始糖尿病管理中家庭参与程度的差异，从被动参与者到更积极的参与者。
