由参与者主导的研究：一种新型研究的新社会契约。
Research led by participants: a new social contract for a new kind of research.
作者信息
Vayena Effy, Brownsword Roger, Edwards Sarah Jane, Greshake Bastian, Kahn Jeffrey P, Ladher Navjoyt, Montgomery Jonathan, O'Connor Daniel, O'Neill Onora, Richards Martin P, Rid Annette, Sheehan Mark, Wicks Paul, Tasioulas John
机构信息
Institute of Biomedical Ethics, University of Zurich, Zurich, Switzerland.
Dickson Poon School of Law, King's College London, London, UK.
出版信息
J Med Ethics. 2016 Apr;42(4):216-9. doi: 10.1136/medethics-2015-102663. Epub 2015 Mar 30.
In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.
近年来，人们强烈呼吁建立一种新的社会契约，赋予公民在健康研究中更核心的角色。通常，这被理解为公民和患者在标准研究事业中拥有更大的话语权和作用。然而，除此之外，重新谈判的契约特别关注对一种全新的、开创性的健康研究方法的监督也很重要：参与者主导的研究。鉴于参与者主导的研究背后的发展势头及其通过挑战和补充传统研究来推进健康知识的潜力，所有利益相关者共同努力确保其蓬勃发展的条件至关重要。
Zotero 插件