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对于患有危及生命疾病的患者,是否需要早期姑息治疗?一项针对患者从诊断开始的护理需求体验的访谈研究。

Is There a Need for Early Palliative Care in Patients With Life-Limiting Illnesses? Interview Study With Patients About Experienced Care Needs From Diagnosis Onward.

作者信息

Beernaert Kim, Deliens Luc, De Vleminck Aline, Devroey Dirk, Pardon Koen, Van den Block Lieve, Cohen Joachim

机构信息

End-of-Life Care Research group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium

End-of-Life Care Research group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.

出版信息

Am J Hosp Palliat Care. 2016 Jun;33(5):489-97. doi: 10.1177/1049909115577352. Epub 2015 Apr 7.

Abstract

The early integration of specialist palliative care has been shown to benefit the quality of life of patients with advanced cancer. In order to explore whether other seriously ill people and people at even earlier phases would also benefit from early palliative care, we conducted 18 qualitative interviews with people having cancer, chronic obstructive lung disease, heart failure, or dementia at different phases of the illness trajectory about how they experienced care needs related to their disease from diagnosis onward. Respondents experienced needs within the different domains of palliative care at different stages of the illness and different illness types or duration of the illness. This study contributes to the understanding of primary care needs of patients for whom palliative care (not necessarily specialized palliative care) could be beneficial.

摘要

早期整合专科姑息治疗已被证明有助于提高晚期癌症患者的生活质量。为了探究其他重症患者以及处于更早阶段的患者是否也能从早期姑息治疗中获益,我们对处于疾病轨迹不同阶段的癌症、慢性阻塞性肺疾病、心力衰竭或痴呆患者进行了18次定性访谈,了解他们从诊断开始如何体验与疾病相关的护理需求。受访者在疾病的不同阶段、不同疾病类型或病程中,在姑息治疗的不同领域都有需求。本研究有助于理解姑息治疗(不一定是专科姑息治疗)可能有益的患者的初级护理需求。

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