Wagner Glenn, Ryan Gery, Huynh Alexis, Kityo Cissy, Mugyenyi Peter
a RAND Corporation , 1776 Main Street , Santa Monica , California , 90407-2138 , United States.
Afr J AIDS Res. 2011 Apr;10(1):37-42. doi: 10.2989/16085906.2011.575546.
With increased uptake of antiretroviral therapy (ART) throughout sub-Saharan Africa, it is critical to have a better understanding of the impact of ART on all health dimensions since the treatment can have the expected benefits as well as unintended negative consequences. We conducted semi-structured interviews with 24 adult HIV clients (19 women and 5 men) in Uganda who had been on ART for at least six months. A grounded approach and content analysis were used to explore the effects of having HIV and undergoing ART on household continuity, social engagement, experience of support and stigma, and children's school attendance. Most of the participants reported loss of a spouse/partner and household discontinuity (e.g. having to move in with extended family) because of HIV, and this was largely unchanged after being on ART. While experiences of HIV stigma and social disengagement were common after an HIV diagnosis, most participants reported improved social interaction after having commenced ART, which for some was tied to economic productivity. Many of the participants' children who had stopped going to school were able to return after the parent was on ART. HIV care and ART, with related improvements in clients' physical and work-related functioning, together with family support, helped to reverse some of the deleterious effects of having HIV. Nonetheless, support that augments healthcare is needed to help individuals provide for themselves and their families, both socially and economically.
随着抗逆转录病毒疗法(ART)在撒哈拉以南非洲地区的使用增加,深入了解ART对所有健康维度的影响至关重要,因为这种治疗既能带来预期益处,也可能产生意外的负面后果。我们对乌干达24名接受ART治疗至少六个月的成年艾滋病毒感染者(19名女性和5名男性)进行了半结构化访谈。采用扎根理论方法和内容分析法,探讨感染艾滋病毒及接受ART治疗对家庭延续性、社会参与、支持与耻辱感体验以及儿童上学情况的影响。大多数参与者报告称,由于感染艾滋病毒,他们失去了配偶/伴侣,家庭也出现了间断(如不得不搬去与大家庭同住),而且在接受ART治疗后,这种情况基本没有改变。虽然在确诊感染艾滋病毒后,遭受耻辱和社会疏离的情况很常见,但大多数参与者表示,开始接受ART治疗后,社交互动有所改善,对一些人来说,这与经济生产力有关。许多原本辍学的参与者子女,在其父母开始接受ART治疗后能够重返校园。艾滋病毒护理和ART治疗,以及患者身体和工作相关功能的相关改善,再加上家庭支持,有助于扭转感染艾滋病毒带来的一些有害影响。尽管如此,仍需要加强医疗保健的支持,以帮助个人在社会和经济方面实现自给自足并供养家庭。