Njelesani Janet, Nixon Stephanie, Cameron Deb, Parsons Janet, Menon Anitha
a Department of Occupational Science and Occupational Therapy , The University of Toronto , Toronto , Canada.
Afr J AIDS Res. 2015;14(1):51-6. doi: 10.2989/16085906.2015.1016985.
This paper focuses on accounts of how having a disability and being HIV-positive influences experiences of work among 21 people (12 women, 9 men) in Lusaka, Zambia. In-depth semi-structured interviews were conducted in English, Bemba, Nyanja, or Zambian sign language. Descriptive and thematic analyses were conducted. Three major themes were generated. The first, a triple burden, describes the burden of having a disability, being HIV-positive, and being unemployed. The second theme, disability and HIV is not inability, describes participants' desire for work and their resistance to being regarded as objects of charity. Finally, how work influences HIV management, describes the practicalities of working and living with HIV. Together these themes highlight the limited options available to persons with disabilities with HIV in Lusaka, not only secondary to the effects of HIV influencing their physical capacity to work, but also because of the attendant social stigma of being a person with a disability and HIV-positive.
本文聚焦于赞比亚卢萨卡21人（12名女性，9名男性）的经历，他们身有残疾且感染了艾滋病毒，这些情况如何影响他们的工作体验。研究采用英语、本巴语、尼扬加语或赞比亚手语进行了深入的半结构化访谈，并进行了描述性和主题分析。研究得出了三个主要主题。第一个主题是“三重负担”，描述了身有残疾、感染艾滋病毒和失业这三重负担。第二个主题是“残疾与艾滋并非无能”，描述了参与者对工作的渴望以及他们对被视为慈善对象的抗拒。最后一个主题是“工作如何影响艾滋病毒管理”，描述了感染艾滋病毒后工作和生活的实际情况。这些主题共同凸显了卢萨卡感染艾滋病毒的残疾人可选择的机会有限，这不仅是因为艾滋病毒影响了他们工作的身体能力，还因为身为残疾人和艾滋病毒感染者所伴随的社会耻辱感。
