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从德国肿瘤学家视角看患者与医生关于生育问题的沟通及相关知识——一项定量调查

Patient-Physician Communication and Knowledge Regarding Fertility Issues from German Oncologists' Perspective-a Quantitative Survey.

作者信息

Buske Dorit, Sender Annekathrin, Richter Diana, Brähler Elmar, Geue Kristina

机构信息

, Krankenhaus Grimma, Grimma, Germany.

Department of Medical Psychology and Medical Sociology, University of Leipzig, Philipp-Rosenthal-Str. 55, 04103, Leipzig, Germany.

出版信息

J Cancer Educ. 2016 Mar;31(1):115-22. doi: 10.1007/s13187-015-0841-0.

DOI:10.1007/s13187-015-0841-0
PMID:25934223
Abstract

Many people diagnosed with haematologic malignancies are of child-bearing age. Typical treatment courses pose a high risk of infertility, and a lot of people affected by this are in the midst of starting or growing their families. Thus, it is crucial that they are well informed about fertility preservation options and can discuss these with an oncologist early on in the development of their treatment plans. Unfortunately, however, this does not always happen. One hundred twenty oncologists from 37 German adult clinical facilities were surveyed regarding their discussions with young patients about fertility, family planning, and fertility preservation. Almost all of them said that they consider fertility preservation to be an important issue. They also reported several factors as having an influence on the likelihood and practicability of discussing these subjects. Most knew about the existence of cryoconservation of germ cells and the use of GnRH analogues (95 %), but only half of them claimed to have a thorough understanding of these options. Many said they would like to learn more about this and that informational brochures could be helpful. Even though many oncologists do have good working knowledge of the subject, patients of reproductive age are not yet consistently given comprehensive information about the options available to them. To improve oncologists' knowledge of reproductive medicine, cooperation with fertility specialists should be facilitated, and informational leaflets should be made available both to patients and their medical care providers.

摘要

许多被诊断患有血液系统恶性肿瘤的人处于育龄期。典型的治疗过程会带来很高的不孕风险,而且很多受此影响的人正处于组建或扩大自己家庭的阶段。因此,至关重要的是,他们要充分了解生育力保存的选择,并能在治疗计划制定的早期就与肿瘤学家讨论这些问题。然而,不幸的是,这种情况并非总是发生。对来自德国37家成人临床机构的120名肿瘤学家进行了调查,询问他们与年轻患者就生育、计划生育和生育力保存问题的讨论情况。几乎所有人都说他们认为生育力保存是一个重要问题。他们还报告了几个影响讨论这些话题的可能性和可行性的因素。大多数人知道生殖细胞冷冻保存和促性腺激素释放激素类似物的使用(95%),但只有一半的人声称对这些选择有透彻的了解。许多人说他们想了解更多,并且信息手册可能会有所帮助。尽管许多肿瘤学家确实对该主题有很好的专业知识,但育龄期患者尚未始终如一地获得关于他们可用选择的全面信息。为了提高肿瘤学家对生殖医学的了解,应促进与生育专家的合作,并向患者及其医疗服务提供者提供信息传单。

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