Xiao Lily Dongxia, Habel Lesley, De Bellis Anita
School of Nursing and Midwifery, Flinders University, GPO Box 2100, Adelaide, 5001, South Australia,
J Cross Cult Gerontol. 2015 Sep;30(3):333-52. doi: 10.1007/s10823-015-9264-y.
The majority of Vietnamese Australians migrated to Australia as refugees to escape a war and this unique migration background may affect their ability to access and utilize healthcare services in Australia. Inability to utilize dementia services is associated with higher levels of caregiver burden, higher rates of morbidities and mortality and hospitalization. The aim of the study was to explore the perceived challenges of dementia care from Vietnamese family caregivers and Vietnamese care workers. Gadamer's philosophical hermeneutics was used to interpret and describe the experiences of the participants. Data were collected from in-depth interviews with six Vietnamese family caregivers and a focus group with Vietnamese care workers using purposive sampling. Participants were recruited from a Vietnamese community care organization in South Australia. Five themes were identified from the data analysis namely: (1) a need for culturally and linguistically appropriate dementia education programs; (2) a willingness and unwillingness to seek help; (3) poor knowledge of health care service availability related to dementia; (4) the effect of language barrier in accessing services; and (5) the main sources of services utilized. The study revealed that Vietnamese family caregivers and Vietnamese care workers held different views on the association of stigma with dementia. Findings also revealed factors that impacted accessing and utilizing dementia services. These findings facilitate a more comprehensive understanding of Vietnamese family caregivers' needs and have implications for developing individualized support for family caregivers and for consumer-directed dementia services in Australia.
大多数澳大利亚越南人作为难民移民到澳大利亚以逃避战争,这种独特的移民背景可能会影响他们在澳大利亚获得和利用医疗保健服务的能力。无法利用痴呆症服务与更高的照料者负担、更高的发病率、死亡率以及住院率相关。本研究的目的是探讨越南家庭照料者和越南护理人员在痴呆症护理方面所察觉到的挑战。运用伽达默尔的哲学诠释学来解读和描述参与者的经历。通过目的抽样法,对六名越南家庭照料者进行深入访谈,并与越南护理人员开展焦点小组访谈来收集数据。参与者从南澳大利亚的一个越南社区护理组织招募而来。数据分析确定了五个主题,即:(1)需要文化和语言适宜的痴呆症教育项目;(2)寻求帮助的意愿和不愿寻求帮助的情况;(3)对与痴呆症相关的医疗保健服务可获得性的了解不足;(4)语言障碍对获取服务的影响;以及(5)所利用服务的主要来源。该研究表明,越南家庭照料者和越南护理人员对痴呆症污名化的关联持有不同观点。研究结果还揭示了影响获取和利用痴呆症服务的因素。这些发现有助于更全面地理解越南家庭照料者的需求,并对为澳大利亚的家庭照料者制定个性化支持以及以消费者为导向的痴呆症服务具有启示意义。