Louden Emily, Allgier Allison, Overton Myra, Welge Jeffrey, Mehlman Charles T
Brachial Plexus Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
Brachial Plexus Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
J Hand Surg Am. 2015 Jun;40(6):1190-5. doi: 10.1016/j.jhsa.2015.03.020. Epub 2015 Apr 30.
To determine the impact of brachial plexus injuries on families to best meet their clinical and social needs.
Our cross-sectional study included families with children between the ages of 1 and 18 years with birth or non-neonatal brachial plexus injuries (BPIs). The consenting parent or guardian completed a demographic questionnaire and the validated Impact on Family Scale during a single assessment. Total scores can range from 0 to 100, with the higher the score indicating a higher impact on the family. Factor analysis and item-total correlations were used to examine structure, individual items, and dimensions of family impact.
A total of 102 caregivers participated. Overall, families perceived various dimensions of impact on having a child with a BPI. Total family impact was 43. The 2 individual items correlating most strongly with the overall total score were from the financial dimension of the Impact on Family Scale. The strongest demographic relationship was traveling nationally for care and treatment of the BPI. Severity of injury was marginally correlated with impact on the family. Parent-child agreement about the severity of the illness was relatively high.
Caretakers of children with a BPI perceived impact on their families in the form of personal strain, family/social factors, financial stress, and mastery. A multidisciplinary clinical care team should address the various realms of impact on family throughout the course of treatment.
TYPE OF STUDY/LEVEL OF EVIDENCE: Prognostic II.
确定臂丛神经损伤对家庭的影响，以更好地满足他们的临床和社会需求。
我们的横断面研究纳入了有1至18岁儿童且患有先天性或非新生儿期臂丛神经损伤（BPI）的家庭。同意参与的父母或监护人在一次评估中完成了一份人口统计学调查问卷以及经过验证的家庭影响量表。总分范围为0至100分，分数越高表明对家庭的影响越大。采用因子分析和项目 - 总分相关性分析来检验家庭影响的结构、单个项目和维度。
共有102名照料者参与。总体而言，家庭感受到了孩子患有BPI对各个方面的影响。家庭总影响得分为43分。与总体总分相关性最强的两个单个项目来自家庭影响量表的经济维度。最显著的人口统计学关联是为BPI的治疗在国内各地奔波。损伤严重程度与对家庭的影响呈微弱相关。父母与孩子在疾病严重程度方面的一致性相对较高。
患有BPI的儿童的照料者感受到疾病对家庭的影响体现在个人压力、家庭/社会因素、经济压力和掌控感等方面。多学科临床护理团队应在整个治疗过程中关注对家庭影响的各个领域。
研究类型/证据水平：预后性研究II级。
