Firat Tüzün, Oskay Deran, Akel Burcu Semin, Oksüz Ciğdem
Department of Physiotherapy and Rehabilitation, Faculty of Health Sciences, Hacettepe University, Ankara, Turkey.
Pediatr Int. 2012 Dec;54(6):881-4. doi: 10.1111/j.1442-200X.2012.03734.x.
The aim of this study was to describe the impact of obstetrical brachial plexus palsy (OBPP) on parents and to investigate the effect of the severity of OBPP and the age of the children on parents.
A total of 106 parents (with a mean age of 30.14 ± 5.01 years) of children with OBPP were included in the study. The functional level of the children was assessed by the Active Movement Scale, whereas the impact of OBPP on the parents was assessed by the Turkish version of the Impact on Family Scale.
The parents appeared to be moderately affected by their child's disorder. Financial, social, personal, mastery parameters and total impact values were 52% (27-77%), 65% (46-114%), 49% (31-67%), 51% (28-74%) and 56% (40-72%), respectively. Root involvement and the age of the children did not make a statistically significant difference in the level of impact.
Detailed knowledge of the impact of OBPP on families might provide a chance to support affected families in coping with the situation and decrease their burden in providing care for the children. It is crucial to evaluate and provide social support to parents of children with OBPP.
本研究的目的是描述产瘫（OBPP）对父母的影响，并调查产瘫严重程度和患儿年龄对父母的影响。
本研究纳入了106名产瘫患儿的父母（平均年龄30.14±5.01岁）。通过主动运动量表评估患儿的功能水平，而通过家庭影响量表的土耳其语版本评估产瘫对父母的影响。
父母似乎受到孩子疾病的中度影响。经济、社会、个人、掌控参数和总影响值分别为52%（27 - 77%）、65%（46 - 114%）、49%（31 - 67%）、51%（28 - 74%）和56%（40 - 72%）。神经根受累情况和患儿年龄在影响程度上没有统计学显著差异。
详细了解产瘫对家庭的影响可能为支持受影响家庭应对这种情况并减轻他们照顾孩子的负担提供机会。评估并为产瘫患儿的父母提供社会支持至关重要。
