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失禁管理对非正式照料者生活质量的影响。

The impact of incontinence management on informal caregivers' quality of life.

作者信息

Di Rosa Mirko, Lamura Giovanni

机构信息

Scientific Direction, National Institute of Health and Science on Aging-I.N.R.C.A., Via S. Margherita 5, 60124, Ancona, Italy.

Centre for Socio-Economic Research on Ageing, National Institute of Health and Science on Aging-I.N.R.C.A., Via S. Margherita 5, 60124, Ancona, Italy.

出版信息

Aging Clin Exp Res. 2016 Feb;28(1):89-97. doi: 10.1007/s40520-015-0367-7. Epub 2015 May 10.

Abstract

BACKGROUND

The presence of incontinence symptoms might affect the quality of life (QoL) of those providing informal care to people suffering from them, causing social isolation, financial problems, psychological and physical exhaustion.

AIMS

This study aimed at assessing whether urinary and/or fecal incontinence in people aged 60 and over affects the level of burden in their informal caregivers.

METHODS

QoL was assessed amongst 304 informal caregivers of older people suffering from urinary and/or fecal incontinence, and compared to that reported by 305 caregivers of non-incontinent older relatives, all living in Italy. All participants were administered a questionnaire focused on: characteristics and conditions of the cared for; details of the care activity; emotions experienced by caregivers; attitudes of caregivers; reasons for providing care; availability of information and support; demographics.

RESULTS

Findings show that, when no incontinence was reported, the longer was the caregiving situation, the better was the caregivers' QoL, which was instead negatively affected by the lack of a support network. As for caregivers' feelings, neither positive nor negative emotions influenced their QoL in a significant way. In terms of caregiver's role, those who felt overwhelmed or loaded with responsibility reported a lower QoL, while the opposite was found among those who felt rewarded and supported, even when incontinence-of any kind-was present.

CONCLUSIONS

The management of incontinence does have a negative impact on caregivers' QoL, but subjective factors might play a mitigating role on such an impact.

摘要

背景

失禁症状的存在可能会影响为失禁患者提供非正式护理者的生活质量(QoL),导致社会隔离、经济问题、心理和身体疲惫。

目的

本研究旨在评估60岁及以上人群的尿失禁和/或大便失禁是否会影响其非正式护理者的负担水平。

方法

对304名照顾患有尿失禁和/或大便失禁老年人的非正式护理者的生活质量进行评估,并与305名照顾无失禁老年亲属的护理者(均居住在意大利)所报告的生活质量进行比较。所有参与者都接受了一份问卷,内容集中于:被照顾者的特征和状况;护理活动的细节;护理者的情绪体验;护理者的态度;提供护理的原因;信息和支持的可获得性;人口统计学信息。

结果

研究结果表明,当报告无失禁情况时,护理时间越长,护理者的生活质量越好,而缺乏支持网络则会对其产生负面影响。至于护理者的感受,积极或消极情绪均未对其生活质量产生显著影响。就护理者的角色而言,那些感到不堪重负或责任重大的人报告的生活质量较低,而那些感到得到回报和支持的人(即使存在任何类型的失禁)情况则相反。

结论

失禁的管理确实会对护理者的生活质量产生负面影响,但主观因素可能会减轻这种影响。

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