Gotoh Momokazu, Matsukawa Yoshihisa, Yoshikawa Yoko, Funahashi Yasuhito, Kato Masashi, Hattori Ryohei
Department of Urology, Nagoya University Graduate School of Medicine, Showa-ku, Nagoya, Japan.
Neurourol Urodyn. 2009;28(6):492-6. doi: 10.1002/nau.20675.
The present study was conducted to assess the impact of urinary incontinence on the psychological burden of family caregivers providing care to disabled family members with urinary incontinence.
This survey was conducted using an Internet panel for family caregivers in Japan, consisting of 7,316 members. We requested the members to respond to an online questionnaire to assess the impact of urinary incontinence on the burden of caregivers. The questionnaire included basic characteristics, and the Japanese version of the Zarit Caregiver Burden Interview (ZBI) comprising 22 questions related to the impact of the patient's disabilities on the burden of their caregivers. Additionally, the participants were asked to include the level of care need, ranging from 0 to 5 according to the grade of disability of the cared individuals.
Relevant data obtained from 757 caregivers were analyzed. Of these caregivers, 452 provided care to family members with urinary incontinence (group 1), and 305 provided care to those without urinary incontinence (group 2). The mean total ZBI score was significantly higher in group 1 than in group 2 (mean, 40.7 vs. 34.7, P < 0.001). The difference in the scores for each item was also significant in 20 of the 22 items. With regard to the level of care need, irrespective of the level, the ZBI scores in group 1 tended to be higher than those in group 2.
The present survey demonstrated a negative impact of urinary incontinence on the psychological burden of family caregivers.
本研究旨在评估尿失禁对照顾患有尿失禁残疾家庭成员的家庭照顾者心理负担的影响。
本调查通过日本一个由7316名成员组成的家庭照顾者网络小组进行。我们要求成员回答一份在线问卷，以评估尿失禁对照顾者负担的影响。问卷包括基本特征，以及日文版的 Zarit 照顾者负担访谈（ZBI），其中包含22个与患者残疾对其照顾者负担的影响相关的问题。此外，要求参与者根据被照顾者的残疾等级，纳入0至5级的护理需求水平。
对从757名照顾者获得的相关数据进行了分析。在这些照顾者中，452人照顾患有尿失禁的家庭成员（第1组），305人照顾没有尿失禁的家庭成员（第2组）。第1组的ZBI总平均分显著高于第2组（平均分分别为40.7和34.7，P < 0.001）。在22个项目中的20个项目中，每个项目的得分差异也具有显著性。关于护理需求水平，无论处于何种水平，第1组的ZBI得分往往高于第2组。
本次调查表明尿失禁对家庭照顾者的心理负担有负面影响。
