Hattink Bart J J, Meiland Franka J M, Campman Carlijn A M, Rietsema Jan, Sitskoorn Margriet, Dröes Rose-Marie
Afdeling psychiatrie, VUmc Amsterdam, Valeriusplein 9, 1075 BG, Amsterdam, Nederland.
Afdeling klinische neuropsychologie, Tilburg University, Tilburg, Nederland.
Tijdschr Gerontol Geriatr. 2015 Oct;46(5):262-81. doi: 10.1007/s12439-015-0130-8.
Most persons with dementia in the Netherlands live at home, where they are cared for by informal carers such as family members or friends, who offer this care unpaid. Their care-task poses a high burden on these informal carers, increasing the risk of health problems and social isolation. Many informal carers indicate they want more information on the behaviour of those they care for.
To develop and evaluate Into D'mentia, a simulation set in a living kitchen in which visitors experience a day in the life of someone with dementia. During this 'day', modern techniques such as sensors and projections, simulate the limitations of having dementia. This intervention is evaluated on usefulness and user friendliness, and on its effect on empathy, attitudes towards dementia, coping, carer burden, person-centered care capabilities and care satisfaction.
Nine informal carers and 23 care professionals took part in the research into the Into D'mentia simulation. Before and after their visit, they filled in several questionnaires, with, among others, their opinion on the usefulness and user friendliness of this experience.
Participants found Into D'mentia a highly useful and user friendly development. They indicated that the simulation offered good insight in the life of someone with dementia, and that they could offer better care thanks to this experience. Participants also indicated that they often thought back on their experiences in the simulation, in order to better understand the behaviour of people with dementia.
Into D'mentia offers a unique, accessible way to experience the limitations dementia has on daily life. Users indicate that it is a useful and user friendly innovation. Into D'mentia appears to be a suitable method to support informal and professional caregivers.
在荷兰，大多数痴呆症患者居家生活，由家庭成员或朋友等非正式护理人员无偿提供照料。他们的护理任务给这些非正式护理人员带来了沉重负担，增加了健康问题和社会隔离的风险。许多非正式护理人员表示，他们希望获得更多有关其所照料对象行为的信息。
开发并评估“融入痴呆症”项目，这是一个设置在真实厨房场景的模拟体验，让参观者感受痴呆症患者一天的生活。在这个“一天”的体验中，传感器和投影等现代技术模拟痴呆症带来的各种限制。对该干预措施进行有用性、用户友好性评估，以及其对同理心、对痴呆症的态度、应对方式、护理负担、以患者为中心的护理能力和护理满意度的影响评估。
九名非正式护理人员和23名护理专业人员参与了对“融入痴呆症”模拟体验的研究。在参观前后，他们填写了几份问卷，其中包括他们对这次体验的有用性和用户友好性的看法。
参与者认为“融入痴呆症”非常有用且用户友好。他们表示，该模拟体验让他们很好地了解了痴呆症患者的生活，并且由于这次体验，他们能够提供更好的护理。参与者还表示，他们经常回想起模拟体验中的经历，以便更好地理解痴呆症患者的行为。
“融入痴呆症”提供了一种独特且易于理解的方式来体验痴呆症对日常生活的限制。用户表示这是一项有用且用户友好的创新。“融入痴呆症”似乎是一种支持非正式和专业护理人员的合适方法。
