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他们表现如何?听听自闭症谱系障碍儿童的父亲如何将自己与正常发育儿童的父亲进行比较。

How are they doing? Listening as fathers of children with autism spectrum disorder compare themselves to fathers of children who are typically developing.

机构信息

University of Calgary, Canada.

University of Calgary, Canada

出版信息

Autism. 2016 Apr;20(3):343-52. doi: 10.1177/1362361315584464. Epub 2015 May 14.

DOI:10.1177/1362361315584464
PMID:25976158
Abstract

The growing prevalence of autism spectrum disorder is accompanied by ongoing efforts to understand and support parents in the face of challenges related to their child's autism spectrum disorder. Although fathers are increasingly hands-on in raising children, research focus on parenting children with autism spectrum disorder continues to be skewed toward experiences of mothers. Our purpose in this article is to contribute understandings of how fathers of children with autism spectrum disorder perceive themselves to be managing, and we undertake this by examining comparisons fathers of children with autism spectrum disorder make between their parenting experiences and experiences of fathers of typically developing children. A purposive sample of 28 fathers of children (aged 2-13 years) with autism spectrum disorder living in an urban center in Western Canada participated in in-depth interviews about their parenting successes and challenges. We found fathers speak of universal fathering experiences yet articulate their own sense of loss and efforts to come to terms with unanticipated demands associated with autism spectrum disorder. Fathers of children with autism spectrum disorder feel "pangs of jealousy" toward fathers of typically developing children, yet they are keenly attentive to their own child's development and convey a sense of gratitude for their child's capabilities and personality amidst an appreciation for trials and triumphs of fathering in general and fathering a child with autism spectrum disorder in particular.

摘要

自闭症谱系障碍的患病率不断上升,与此同时,人们也在不断努力理解和支持患儿家长,帮助他们应对与自闭症谱系障碍相关的挑战。尽管父亲在抚养孩子方面越来越亲力亲为,但有关自闭症谱系障碍患儿父母养育子女的研究重点仍然偏向于母亲的经历。本文旨在深入了解自闭症谱系障碍患儿的父亲如何看待自己在管理方面的情况,为此,我们考察了自闭症谱系障碍患儿的父亲将自己的育儿经历与发育正常儿童的父亲的育儿经历进行比较的情况。我们在加拿大西部一个城市中心对 28 名自闭症谱系障碍患儿(年龄 2-13 岁)的父亲进行了深入访谈,了解他们在育儿方面的成功和挑战。我们发现,父亲们谈到了普遍的育儿经历,但也表达了自己的失落感,以及努力应对与自闭症谱系障碍相关的意外需求。自闭症谱系障碍患儿的父亲对发育正常儿童的父亲感到“嫉妒”,但他们非常关注自己孩子的发展,并在对一般育儿和自闭症谱系障碍患儿育儿的考验和成功表示感激的同时,传达出一种对孩子能力和个性的感激之情。

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