Matsubasa Tadashi, Kimura Akihiko, Shinohara Makoto, Endo Fumio
Kumamoto University Hospital.
Kumamoto-Ashikita Institution for Developmental Disabilities.
Pediatr Int. 2015 Dec;57(6):1154-8. doi: 10.1111/ped.12687. Epub 2015 Sep 10.
In Japan, improvement in the care for institutionalized patients with severe motor and intellectual disabilities (SMID) has resulted in improved prognosis compared with previous decades, leading to difficulty in entering institutions because of the limited capacity. In recent years, new SMID patients discharged mostly from neonatal intensive care units receive care in their parents' homes rather than in institutions. In order to effect this change, an assessment of patient care in both an institutional and home environment is of utmost importance.
We performed a minute-by-minute time study of the work of staff members (n = 31) in a ward in an institution for SMID (31 patients with no ventilators) over 48 h in order to reconstruct patient care.
Significant differences were found between the entirely immobile group (n = 15) and semi-mobile group (n = 13) in the area of total care time (124.6 vs 83.4 min/day, respectively, P = 0.003) and non-medical care time (99.1 vs 69.0 min/day, P = 0.003). Nurses (16 in total) did twice as many tasks as other staff members in the areas of medical care and general care management. The number of tasks was the same for nurses and other staff members in the areas of non-medical care and social participation/others.
Patient care undertaken by medical professionals in the areas of both ordinary care as well as medical care seemed to have contributed to improved prognosis in SMID patients. This study demonstrates the essential nature of nursing care for SMID patients living in institutions and at home.
在日本,与过去几十年相比,为重度运动和智力残疾(SMID)的住院患者提供的护理有所改善,预后得到了提升,然而由于机构容量有限,导致入院困难。近年来,新的SMID患者大多从新生儿重症监护病房出院后,在父母家中接受护理,而非在机构中。为了实现这一转变,对机构和家庭环境中的患者护理进行评估至关重要。
我们对一所SMID机构病房的工作人员(n = 31)进行了为期48小时的逐分钟工时研究,以重建患者护理情况(31名患者无需使用呼吸机)。
在总护理时间(分别为124.6分钟/天和83.4分钟/天,P = 0.003)和非医疗护理时间(99.1分钟/天和69.0分钟/天,P = 0.003)方面,完全不能活动组(n = 15)和半活动组(n = 13)之间存在显著差异。护士(共16名)在医疗护理和一般护理管理方面的任务量是其他工作人员的两倍。在非医疗护理和社会参与/其他方面,护士和其他工作人员的任务量相同。
医疗专业人员在普通护理和医疗护理方面所提供的患者护理似乎有助于改善SMID患者的预后。本研究证明了为居住在机构和家中的SMID患者提供护理的重要性。