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努力融入瑞典社会:患有小儿麻痹后遗症的移民所采用的策略。

Struggling to be part of Swedish society: Strategies used by immigrants with late effects of polio.

作者信息

Santos Tavares Silva Iolanda, Thorén-Jönsson Anna-Lisa

机构信息

a 1 Department of Health and Rehabilitation, Institute of Neuroscience and Physiology, The Sahlgrenska Academy at University of Gothenburg , Gothenburg, Sweden.

出版信息

Scand J Occup Ther. 2015;22(6):450-61. doi: 10.3109/11038128.2015.1057222. Epub 2015 Jun 29.

DOI:10.3109/11038128.2015.1057222
PMID:26107773
Abstract

OBJECTIVE

To explore and describe strategies in daily occupations among immigrants with late effects of polio.

METHOD

The strategies were explored by interviews with 12 immigrants from Eastern Africa with late effects of polio. Sampling and data analysis was carried out according to grounded theory.

RESULTS

The participants struggled for occupational participation and normality in an effort to participate in, and be part of, society. The study identified 14 strategies used by the immigrants in their daily occupations. The strategies can be presented in the following four categories: managing physical capacity; promoting occupational performance; strategies for gaining respect; and preparing the ground for one's existence. The participants struggled to find a balance between physical capacity and meaningful occupations, conception of their own and others' norms and values, and living conditions in Swedish society. The strategies were related to the participants' will to manage daily occupations, maintain social relationships, and be part of society.

CONCLUSIONS

The strategies revealed that the participants strive to participate in occupations and society. This study reinforces the importance of occupation for immigrants with disability. The results highlight the need for adequate health care and rehabilitation but should also alert other social institutions.

摘要

目的

探讨并描述患有小儿麻痹后遗症的移民在日常活动中的策略。

方法

通过对12名来自东非且患有小儿麻痹后遗症的移民进行访谈来探究这些策略。抽样和数据分析依据扎根理论进行。

结果

参与者为职业参与和正常生活而努力,以融入社会并成为其中一员。该研究确定了移民在日常活动中使用的14种策略。这些策略可分为以下四类:管理身体能力;促进职业表现;获得尊重的策略;以及为自身生存奠定基础。参与者努力在身体能力与有意义的活动之间、自己与他人的规范和价值观观念之间以及瑞典社会的生活条件之间找到平衡。这些策略与参与者管理日常活动、维持社会关系以及融入社会的意愿相关。

结论

这些策略表明参与者努力参与活动和融入社会。本研究强化了活动对残疾移民的重要性。结果凸显了提供充分医疗保健和康复服务的必要性,但也应引起其他社会机构的警觉。

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引用本文的文献

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"The car is my extra legs" - Experiences of outdoor mobility amongst immigrants in Sweden with late effects of polio.“汽车是我的额外的腿”——瑞典患有小儿麻痹症后遗症的移民户外出行体验。
PLoS One. 2019 Oct 31;14(10):e0224685. doi: 10.1371/journal.pone.0224685. eCollection 2019.
2
The extent of using mobility assistive devices can partly explain fatigue among persons with late effects of polio - a retrospective registry study in Sweden.使用移动辅助设备的程度可以部分解释小儿麻痹后遗症患者的疲劳情况——瑞典的一项回顾性登记研究。
BMC Neurol. 2016 Nov 18;16(1):230. doi: 10.1186/s12883-016-0753-6.