Willems Roy A, Bolman Catherine A W, Mesters Ilse, Kanera Iris M, Beaulen Audrey A J M, Lechner Lilian
Faculty of Psychology and Educational Sciences, Open University of the Netherlands, Heerlen, The Netherlands.
CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, The Netherlands.
Psychooncology. 2016 Jan;25(1):51-7. doi: 10.1002/pon.3870. Epub 2015 Jun 25.
To explore cancer survivors' unmet needs in the first year after primary treatment, and to investigate the relationship between demographic, disease-related, and psychosocial characteristics and the number of unmet needs in different domains.
Cancer survivors were recruited through eight Dutch hospitals (November 2012-January 2013). In a cross-sectional survey, 255 survivors were asked about unmet needs across several domains (CaSUN) and demographic, disease-related, and psychosocial characteristics, comprising quality of life (EORTC QLQ-C30), psychological distress (HADS), mental adjustment (MAC), and problem solving (SPSI-R:S).
Sixty-three percent of survivors reported one or more unmet needs (M = 5.13, SD = 6.98, range = 0-34). Common unmet needs concerned emotional support (31.3%), smoking cessation (26.7% of smokers), managing side effects/complications (25.9%), fear of recurrence (23.0%), cancer care (22.0%), social support (22.0%), up-to-date information (19.8%), and carrying out work (19.6%). Regression analysis showed that age, higher education, participation in support programs, anxiety, depression, and negative adjustment style correlated positively, while being female, time since last treatment, and quality of life correlated negatively with the number of unmet needs. Lower number of unmet needs also accounted for other types of cancer (except colon cancer) than breast cancer. These relationships differed per need domain.
The heterogeneity in unmet needs complicates the provision of adequate support for survivors.
探讨癌症幸存者在初次治疗后第一年未满足的需求，并调查人口统计学、疾病相关及心理社会特征与不同领域未满足需求数量之间的关系。
通过荷兰的八家医院招募癌症幸存者（2012年11月至2013年1月）。在一项横断面调查中，询问了255名幸存者在多个领域（癌症幸存者未满足需求问卷）的未满足需求以及人口统计学、疾病相关和心理社会特征，包括生活质量（欧洲癌症研究与治疗组织生活质量问卷C30）、心理困扰（医院焦虑抑郁量表）、心理调适（心理适应量表）和问题解决能力（简化问题解决量表）。
63%的幸存者报告有一项或多项未满足的需求（M = 5.13，标准差 = 6.98，范围 = 0 - 34）。常见的未满足需求涉及情感支持（31.3%）、戒烟（吸烟者中的26.7%）、管理副作用/并发症（25.9%）、对复发的恐惧（23.0%）、癌症护理（22.0%）、社会支持（22.0%）、最新信息（19.8%）和工作开展（19.6%）。回归分析表明，年龄、高等教育、参与支持项目、焦虑、抑郁和消极调适方式呈正相关，而女性、上次治疗后的时间和生活质量与未满足需求的数量呈负相关。未满足需求数量较少也适用于除结肠癌外的其他类型癌症（而非乳腺癌）。这些关系因需求领域而异。
未满足需求的异质性使得为幸存者提供充分支持变得复杂。
