Kapp-Simon Kathleen A, Edwards Todd, Ruta Caroline, Bellucci Claudia Crilly, Aspirnall Cassandra L, Strauss Ronald P, Topolski Tari D, Rumsey Nichola J, Patrick Donald L
*Division of Plastic Surgery, Department of Surgery, Feinberg School of Medicine, Northwestern University †Cleft-Craniofacial Clinic, Departments of Plastic Surgery and Psychology, Shriners Hospitals for Children, Chicago, IL ‡Department of Health Services, School of Public Health, University of Washington §Craniofacial Center, Seattle Children's Hospital, Seattle, WA ||Craniofacial Center, University of North Carolina at Chapel Hill, Chapel Hill, NC ¶Department of Health & Social Studies, UWE Bristol, Bristol, UK.
J Craniofac Surg. 2015 Jul;26(5):1574-80. doi: 10.1097/SCS.0000000000001892.
The aim of this study was to identify factors associated with youth satisfaction with surgical procedures performed to address oral cleft or craniofacial conditions (CFCs). It was hypothesized that youth mental health, participation in decision making, perceived consequences of living with a CFC, and coping strategies would be associated with satisfaction with past surgeries. A total of 203 youth between the ages of 11 and 18 years (mean age = 14.5, standard deviation = 2.0, 61% male participants, 78% oral cleft) completed a series of questionnaires measuring depression, self-esteem, participation in decision making, condition severity, negative and positive consequences of having a CFC, coping, and satisfaction with past surgeries. Multiple regression analysis using boot-strapping techniques found that youth participation in decision making, youth perception of positive consequences of having a CFC, and coping accounted for 32% of the variance in satisfaction with past surgeries (P < 0.001). Youth age, sex, and assessment of condition severity were not significantly associated with satisfaction with surgical outcome. Depression, self-esteem, and negative consequences of having a CFC were not associated with satisfaction with past surgeries. Youth should be actively involved in the decision for craniofacial surgery. Youth who were more satisfied with their surgical outcomes also viewed themselves as having gained from the experience of living with a CFC. They felt that having a CFC made them stronger people and they believed that they were more accepting of others and more in touch with others' feelings because of what they had been through.
本研究的目的是确定与青少年对治疗口腔腭裂或颅面疾病(CFCs)的外科手术满意度相关的因素。研究假设青少年心理健康、参与决策、对患有CFCs的感知后果以及应对策略与对过去手术的满意度相关。共有203名年龄在11至18岁之间的青少年(平均年龄 = 14.5,标准差 = 2.0,61%为男性参与者,78%为口腔腭裂患者)完成了一系列问卷,这些问卷测量了抑郁、自尊、参与决策、病情严重程度、患有CFCs的负面和正面后果、应对方式以及对过去手术的满意度。使用自抽样技术的多元回归分析发现,青少年参与决策、对患有CFCs的积极后果的感知以及应对方式占过去手术满意度方差的32%(P < 0.001)。青少年的年龄、性别和病情严重程度评估与手术结果满意度无显著关联。抑郁、自尊以及患有CFCs的负面后果与对过去手术的满意度无关。青少年应积极参与颅面手术的决策。对手术结果更满意的青少年也认为自己从患有CFCs的经历中有所收获。他们觉得患有CFCs让他们变得更坚强,并且他们相信因为自己所经历的一切,他们更能接纳他人,也更能体会他人的感受。