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《2013年日内瓦以人为本的健康研究宣言》的背景、架构及优先事项

Background, Structure and Priorities of the 2013 Geneva Declaration on Person-centered Health Research.

作者信息

Salvador-Carulla Luis, Cloninger C Robert, Thornicroft Amalia, Mezzich Juan E

机构信息

Centre for Disability Research and Policy, Faculty of Health Sciences, University of Sydney (Australia).

Washington University School of Medicine, St Louis (USA).

出版信息

Int J Pers Cent Med. 2013;3(2):109-113. doi: 10.5750/ijpcm.v3i2.401.

Abstract

Declarations are relevant tools to frame new areas in health care, to raise awareness and to facilitate knowledge-to-action. The International College on Person Centered Medicine (ICPCM) is seeking to extend the impact of the ICPCM Conference Series by producing a declaration on every main topic. The aim of this paper is to describe the development of the 2013 Geneva Declaration on Person-centered Health Research and to provide additional information on the research priority areas identified during this iterative process. There is a need for more PCM research and for the incorporation of the PCM approach into general health research. Main areas of research focus include: Conceptual, terminological, and ontological issues; research to enhance the empirical evidence of PCM main components such as PCM informed clinical communication; PCM-based diagnostic models; person-centered care and interventions; and people-centered care, research on training and curriculum development. Dissemination and implementation of PCM knowledge-base is integral to Person-centered Health Research and shall engage currently available scientific and translational dissemination tools such journals, events and eHealth.

摘要

宣言是界定医疗保健新领域、提高认识并促进知识转化为行动的重要工具。国际以患者为中心医学学院(ICPCM)正试图通过就每个主要主题发表一份宣言来扩大ICPCM会议系列的影响力。本文旨在描述《2013年日内瓦以患者为中心的健康研究宣言》的制定过程,并提供有关在此迭代过程中确定的研究优先领域的更多信息。需要开展更多以患者为中心的医学研究,并将以患者为中心的医学方法纳入一般健康研究。主要研究重点领域包括:概念、术语和本体论问题;增强以患者为中心的医学主要组成部分的实证证据的研究,如以患者为中心的医学指导下的临床沟通;基于以患者为中心的医学的诊断模型;以患者为中心的护理和干预措施;以及以人为本的护理、培训和课程开发研究。以患者为中心的健康研究不可或缺的一部分是传播和实施以患者为中心的医学知识库,并且应利用当前可用的科学和转化传播工具,如期刊、活动和电子健康。

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