Coquillette Madeline, Cox Joanne E, Cheek Sara, Webster Romi A
Division of General Pediatrics, Department of Medicine, Children's Hospital Primary Care Center, Boston Children's Hospital, 300 Longwood Avenue, Hunnewell Ground Floor, Boston, MA, 02115, USA.
Matern Child Health J. 2015 Dec;19(12):2707-13. doi: 10.1007/s10995-015-1795-x.
Children with medical complexity (CMC) are a growing population in pediatric primary care practices, and families caring for these children face increased medical, developmental, education and social needs. The objective of this study was to quantify hospital-wide social work services utilization by CMC compared to non-medically-complex children (non-CMC) to inform the development of family-centered care models that support these vulnerable patients and families.
Social work department records from a tertiary children's hospital were used to compare CMC aged 0-17 (n = 564) with age- and sex-matched non-CMC (n = 1128) over a 16-month retrospective period. The main outcomes measures were the proportion of patients who used social work services and mean number of hours of services provided per patient, both by social work providers in the primary care setting and throughout the hospital.
A greater percentage of CMC used social work services than non-CMC (60.3 vs. 18.9%), and CMC used more hours per child (5.50 h/child vs. 0.69). In multivariate analysis, medical complexity was associated with 6.23-fold greater odds of using social work services (95% CI 4.94-7.85) and with 8.07 times more hours of services per child (95% CI 6.30-10.34), independent of primary health insurance, age, or sex.
This study confirms that CMC use significantly more social work services in the medical setting. This must be considered when designing proactive medical home models to provide high quality family-centered care for this population, and further research is needed to elucidate the factors that drive this utilization.
患有复杂疾病的儿童(CMC)在儿科初级保健机构中的数量不断增加,照顾这些孩子的家庭面临着更多的医疗、发育、教育和社会需求。本研究的目的是量化CMC与非复杂疾病儿童(非CMC)在全院范围内对社会工作服务的利用率,为支持这些弱势患者及其家庭的以家庭为中心的护理模式的发展提供依据。
在为期16个月的回顾期内,使用一家三级儿童医院社会工作部门的记录,将0至17岁的CMC(n = 564)与年龄和性别匹配的非CMC(n = 1128)进行比较。主要结局指标是使用社会工作服务的患者比例以及每位患者获得的服务平均小时数,包括初级保健环境中和全院范围内的社会工作提供者提供的服务。
使用社会工作服务的CMC比例高于非CMC(60.3%对18.9%),且每个CMC使用的小时数更多(5.50小时/儿童对0.69小时)。在多变量分析中,疾病复杂性与使用社会工作服务的几率高6.23倍(95%CI 4.94 - 7.85)以及每个儿童的服务小时数多8.07倍(95%CI 6.30 - 10.34)相关,与基本医疗保险、年龄或性别无关。
本研究证实,CMC在医疗环境中使用的社会工作服务显著更多。在设计主动式医疗之家模式以为该人群提供高质量的以家庭为中心的护理时,必须考虑到这一点,并且需要进一步研究以阐明推动这种利用率的因素。