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阿拉斯加原住民结直肠癌家庭外展项目的过程评估

A Process Evaluation of the Alaska Native Colorectal Cancer Family Outreach Program.

作者信息

Redwood Diana, Provost Ellen, Lopez Ellen D S, Skewes Monica, Johnson Rhonda, Christensen Claudia, Sacco Frank, Haverkamp Donald

机构信息

Alaska Native Epidemiology Center, Alaska Native Tribal Health Consortium, Anchorage, AK, USA

Alaska Native Epidemiology Center, Alaska Native Tribal Health Consortium, Anchorage, AK, USA.

出版信息

Health Educ Behav. 2016 Feb;43(1):35-42. doi: 10.1177/1090198115590781. Epub 2015 Jul 8.

Abstract

This article presents the results of a process evaluation of the Alaska Native (AN) Colorectal Cancer (CRC) Family Outreach Program, which encourages CRC screening among AN first-degree relatives (i.e., parents, siblings, adult children; hereafter referred to as relatives) of CRC patients. Among AN people incidence and death rates from CRC are the highest of any ethnic/racial group in the United States. Relatives of CRC patients are at increased risk; however, CRC can be prevented and detected early through screening. The evaluation included key informant interviews (August to November 2012) with AN and non-AN stakeholders and program document review. Five key process evaluation components were identified: program formation, evolution, outreach responses, strengths, and barriers and challenges. Key themes included an incremental approach that led to a fully formed program and the need for dedicated, culturally competent patient navigation. Challenges included differing relatives' responses to screening outreach, health system data access and coordination, and the program impact of reliance on grant funding. This program evaluation indicated a need for more research into motivating patient screening behaviors, electronic medical records systems quality improvement projects, improved data-sharing protocols, and program sustainability planning to continue the dedicated efforts to promote screening in this increased risk population.

摘要

本文介绍了阿拉斯加原住民(AN)结直肠癌(CRC)家庭外展项目的过程评估结果,该项目鼓励CRC患者的AN一级亲属(即父母、兄弟姐妹、成年子女;以下简称亲属)进行CRC筛查。在美国,AN人群的CRC发病率和死亡率在所有种族/族裔群体中是最高的。CRC患者的亲属患病风险更高;然而,CRC可以通过筛查预防和早期发现。该评估包括2012年8月至11月对AN和非AN利益相关者进行的关键信息访谈以及项目文件审查。确定了五个关键的过程评估组成部分:项目形成、演变、外展反应、优势以及障碍和挑战。关键主题包括逐步形成一个完整项目的渐进方法以及对专业的、具备文化能力的患者引导的需求。挑战包括亲属对筛查外展的不同反应、卫生系统数据获取与协调以及依赖赠款资金对项目的影响。该项目评估表明,需要对激发患者筛查行为、电子病历系统质量改进项目、改进数据共享协议以及项目可持续性规划进行更多研究,以便继续在这个患病风险增加的人群中为促进筛查做出专门努力。

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