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中风或帕金森病后的合唱疗法:参与者体验探索

Choral singing therapy following stroke or Parkinson's disease: an exploration of participants' experiences.

作者信息

Fogg-Rogers Laura, Buetow Stephen, Talmage Alison, McCann Clare M, Leão Sylvia H S, Tippett Lynette, Leung Joan, McPherson Kathryn M, Purdy Suzanne C

机构信息

a Science Communication Unit, University of the West of England , Bristol , UK .

b Centre for Brain Research, The University of Auckland , Auckland , New Zealand .

出版信息

Disabil Rehabil. 2016;38(10):952-62. doi: 10.3109/09638288.2015.1068875. Epub 2015 Jul 22.

DOI:10.3109/09638288.2015.1068875
PMID:26200449
Abstract

PURPOSE

People with stroke or Parkinson's disease (PD) live with reduced mood, social participation and quality of life (QOL). Communication difficulties affect 90% of people with PD (dysarthria) and over 33% of people with stroke (aphasia). These consequences are disabling in many ways. However, as singing is typically still possible, its therapeutic use is of increasing interest. This article explores the experiences of and factors influencing participation in choral singing therapy (CST) by people with stroke or PD and their significant others.

METHOD

Participants (eight people with stroke, six with PD) were recruited from a community music therapy choir running CST. Significant others (seven for stroke, two for PD) were also recruited. Supported communication methods were used as needed to undertake semi-structured interviews (total N = 23).

RESULTS

Thematic analysis indicated participants had many unmet needs associated with their condition, which motivated them to explore self-management options. CST participation was described as an enjoyable social activity, and participation was perceived as improving mood, language, breathing and voice.

CONCLUSIONS

Choral singing was perceived by people with stroke and PD to help them self-manage some of the consequences of their condition, including social isolation, low mood and communication difficulties.

IMPLICATIONS FOR REHABILITATION

Choral singing therapy (CST) is sought out by people with stroke and PD to help self-manage symptoms of their condition. Participation is perceived as an enjoyable activity which improves mood, voice and language symptoms. CST may enable access to specialist music therapy and speech language therapy protocols within community frameworks.

摘要

目的

中风或帕金森病(PD)患者的情绪、社交参与度和生活质量(QOL)均有所下降。沟通困难影响了90%的帕金森病患者(构音障碍)和超过33%的中风患者(失语症)。这些后果在很多方面都使人丧失能力。然而,由于唱歌通常仍是可行的,其治疗用途越来越受到关注。本文探讨了中风或帕金森病患者及其重要他人参与合唱疗法(CST)的经历和影响因素。

方法

从开展合唱疗法的社区音乐治疗合唱团中招募参与者(8名中风患者、6名帕金森病患者)。还招募了重要他人(7名中风患者的重要他人、2名帕金森病患者的重要他人)。根据需要使用支持性沟通方法进行半结构化访谈(总N = 23)。

结果

主题分析表明,参与者有许多与其病情相关的未满足需求,这促使他们探索自我管理选项。合唱疗法的参与被描述为一项愉快的社交活动,并且参与被认为能改善情绪、语言、呼吸和嗓音。

结论

中风和帕金森病患者认为合唱有助于他们自我管理病情的一些后果,包括社交孤立、情绪低落和沟通困难。

对康复的启示

中风和帕金森病患者寻求合唱疗法(CST)来帮助自我管理病情症状。参与被认为是一项愉快的活动,可改善情绪、嗓音和语言症状。合唱疗法可能使在社区框架内获得专业音乐治疗和言语语言治疗方案成为可能。

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