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中东欧及独立国家联合体的姑息治疗信息需求

Palliative Care Information Needs in Central and Eastern Europe and the Commonwealth of Independent States.

作者信息

Jünger Saskia, Klose Jasper, Brearley Sarah, Hegedus Katalin, Payne Sheila, Radbruch Lukas

出版信息

J Palliat Care. 2015;31(2):109-17. doi: 10.1177/082585971503100207.

Abstract

In a cross-national survey, we examined the information needs and barriers to accessing palliative care information in Central and Eastern Europe (CEE) and the Commonwealth of Independent States (CIS). In total, 584 healthcare professionals from 22 countries completed the questionnaire. Information on legislation and official papers (67 percent) and information on education courses in palliative care (65 percent) were the most frequently reported information needs. Major barriers to accessing palliative care information were language and a lack of easily accessible and affordable, clinically relevant information. An informative Web site, an electronic newsletter, and regular meetings or conferences were rated as the most important information channels. We concluded that access to reliable and well-structured information should be facilitated for healthcare professionals in CEE and CIS countries to assist them in their clinical decision making. Most importantly, more in-depth qualitative research and dialogue with stakeholders in the different countries are needed to develop context-specific, tailor-made strategies.

摘要

在一项跨国调查中,我们研究了中欧和东欧(CEE)以及独立国家联合体(CIS)地区获取姑息治疗信息的信息需求和障碍。共有来自22个国家的584名医疗保健专业人员完成了问卷调查。关于立法和官方文件的信息(67%)以及关于姑息治疗教育课程的信息(65%)是最常报告的信息需求。获取姑息治疗信息的主要障碍是语言以及缺乏易于获取、价格合理且与临床相关的信息。一个信息丰富的网站、一份电子通讯以及定期会议或研讨会被评为最重要的信息渠道。我们得出结论,应促进中东欧和独联体国家的医疗保健专业人员获取可靠且结构良好的信息,以协助他们进行临床决策。最重要的是,需要开展更深入的定性研究并与不同国家的利益相关者进行对话,以制定针对具体情况的量身定制策略。

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