McClellan Wendy, Fulbright Joy M, Doolittle Gary C, Alsman Kyla, Klemp Jennifer R, Ryan Robin, Nelson Eve-Lynn, Stegenga Kristin, Krebill Hope, Al-hihi Eyad M, Schuetz Nik, Heiman Ashley, Lowry Becky
Children's Mercy Hospital, Kansas City, MO.
Children's Mercy Hospital, Kansas City, MO.
J Pediatr Nurs. 2015 Sep-Oct;30(5):e147-55. doi: 10.1016/j.pedn.2015.05.026. Epub 2015 Jul 20.
With a 5 year survival rate of approximately 80%, there is an increasing number of childhood cancer survivors in the United States. Childhood cancer survivors are at an increased risk for physical and psychosocial health problems many years after treatment. Long-term follow-up care should include education, development of individualized follow up plans and screening for health problems in accordance with the Children's Oncology Group survivor guidelines. Due to survivor, provider and healthcare system related barriers, adult survivors of childhood cancer (ASCC) infrequently are receiving care in accordance to these guidelines. In this paper we describe the stepwise process and collaboration between a children's hospital and an adult academic medical center that was implemented to develop the Survivorship Transition Clinic and address the needs of ASCC in our region. In the clinic model that we designed ASCC follow-up with a primary care physician in the adult setting who is knowledgeable about late effects of childhood cancer treatment and are provided transition support and education by a transition nurse navigator.
美国儿童癌症幸存者的数量不断增加，其5年生存率约为80%。儿童癌症幸存者在治疗多年后出现身体和心理社会健康问题的风险增加。长期随访护理应包括教育、制定个性化随访计划以及根据儿童肿瘤学组幸存者指南对健康问题进行筛查。由于幸存者、提供者和医疗系统相关的障碍，儿童癌症成年幸存者（ASCC）很少按照这些指南接受护理。在本文中，我们描述了一家儿童医院与一家成人学术医疗中心之间为建立幸存者过渡诊所并满足我们地区ASCC需求而实施的逐步过程和合作。在我们设计的诊所模式中，ASCC在成人环境中由一名了解儿童癌症治疗晚期影响的初级保健医生进行随访，并由一名过渡护士导航员提供过渡支持和教育。
