Alliance for Canadian Health Outcomes Research in Diabetes, School of Public Health, University of Alberta, Alberta, Canada.
Faculty of Medicine, University of Alberta, Alberta, Canada.
Can J Diabetes. 2015 Oct;39 Suppl 3:S113-9. doi: 10.1016/j.jcjd.2015.05.005. Epub 2015 Aug 1.
To better understand the factors that affect care and outcomes in patients with type 2 diabetes, we developed the prospective Alberta's Caring for Diabetes (ABCD) cohort to collect, monitor and analyze data concerning several sociodemographic, behavioural, psychosocial, clinical and physiological factors that might influence diabetes care and outcomes.
We recruited 2040 individuals with type 2 diabetes through primary care networks, diabetes clinics and public advertisements. Data are being collected through self-administered surveys, including standardized measures of health status and self-care behaviours, and will eventually be linked to laboratory and administrative healthcare data and other novel databases.
The average age of respondents was 64.4 years (SD=10.7); 45% were female, and 91% were white, with average duration of diabetes of 12 years (SD=10.0). The majority (76%) were physically inactive, and 10% were smokers. Most (88%) reported 2 or more chronic conditions in addition to diabetes, and 18% screened positively for depressive symptoms. The majority (92%) consented to future linkage with administrative data. Based on the literature and comparison with other surveys, the cohort appeared to fairly represent the general Alberta population with diabetes.
The ABCD cohort will serve as the basis for explorations of the multidimensional and dynamic nature of diabetes care and complications. These data will contribute to broader scientific literature and will also help to identify local benchmarks and targets for intervention strategies, helping to guide policies and resource allocation related to the care and management of patients with type 2 diabetes in Alberta, Canada.
为了更好地了解影响 2 型糖尿病患者护理和结局的因素,我们开发了前瞻性的艾伯塔省关爱糖尿病(ABCD)队列,以收集、监测和分析与可能影响糖尿病护理和结局的几个社会人口学、行为、心理社会、临床和生理因素相关的数据。
我们通过初级保健网络、糖尿病诊所和公共广告招募了 2040 名 2 型糖尿病患者。数据通过自我管理调查收集,包括健康状况和自我护理行为的标准化测量,最终将与实验室和行政医疗保健数据以及其他新的数据库进行链接。
受访者的平均年龄为 64.4 岁(SD=10.7);45%为女性,91%为白人,平均糖尿病病程为 12 年(SD=10.0)。大多数人(76%)身体不活跃,10%为吸烟者。大多数人(88%)除了糖尿病外还报告了 2 种或更多慢性疾病,18%有抑郁症状。大多数人(92%)同意未来与行政数据进行链接。根据文献和与其他调查的比较,该队列似乎相当能代表艾伯塔省的一般糖尿病人群。
ABCD 队列将作为探索糖尿病护理和并发症的多维和动态性质的基础。这些数据将有助于更广泛的科学文献,并有助于确定当地的基准和干预策略目标,帮助指导与加拿大艾伯塔省 2 型糖尿病患者护理和管理相关的政策和资源分配。