Russell Steve, Namukwaya Stella, Zalwango Flavia, Seeley Janet
University of East Anglia, Norwich, United Kingdom
Uganda Virus Research Institute Research Unit on AIDS, Entebbe, Uganda.
Qual Health Res. 2016 Sep;26(11):1447-58. doi: 10.1177/1049732315597654. Epub 2015 Aug 5.
In this article, we examine how people living with HIV (PLWH) were able to reconceptualize or "reframe" their understanding of HIV and enhance their capacity to self-manage the condition. Two in-depth interviews were held with 38 PLWH (20 women, 18 men) selected from three government and nongovernment antiretroviral therapy (ART) delivery sites in Wakiso District, and the narratives analyzed. ART providers played an important role in shaping participants' HIV self-management processes. Health workers helped PLWH realize that they could control their condition, provided useful concepts and language for emotional coping, and gave advice about practical self-management tasks, although this could not always be put into practice. ART providers in this setting were spaces for the development of a collective identity and a particular form of therapeutic citizenship that encouraged self-management, including adherence to ART. Positive framing institutions are important for many PLWH in resource-limited settings and the success of ART programs.
在本文中,我们研究了艾滋病毒感染者(PLWH)如何能够重新概念化或“重新构建”他们对艾滋病毒的理解,并增强自我管理病情的能力。我们对从瓦基索区三个政府和非政府抗逆转录病毒疗法(ART)提供点挑选出的38名艾滋病毒感染者(20名女性,18名男性)进行了两次深度访谈,并对访谈内容进行了分析。抗逆转录病毒疗法提供者在塑造参与者的艾滋病毒自我管理过程中发挥了重要作用。卫生工作者帮助艾滋病毒感染者认识到他们可以控制自己的病情,提供了用于情绪应对的有用概念和语言,并就实际的自我管理任务提供了建议,尽管这些建议并非总能付诸实践。在这种情况下,抗逆转录病毒疗法提供者是集体身份发展和鼓励自我管理(包括坚持抗逆转录病毒疗法)的一种特殊形式的治疗公民身份的空间。积极的构建机构对资源有限环境中的许多艾滋病毒感染者以及抗逆转录病毒疗法项目的成功都很重要。