Carr E W
Hosp J. 1989;5(3-4):135-51. doi: 10.1080/0742-969x.1989.11882660.
Hospice programs which, through experience, have become aware of the psychosocial issues of patients with AIDS, need to share their observations. Patients react to the physical realities of the disease while experiencing the stigma and fear which society imposes on AIDS. Hospice support of parents of patients with AIDS focuses on issues of guilt and shame while encouraging validation of the lives of their children. Hospice workers find rewards include personal growth in self-awareness and perspective.
临终关怀项目通过实践,已认识到艾滋病患者的心理社会问题,需要分享他们的观察结果。患者在应对疾病的身体现实的同时,还要承受社会对艾滋病所施加的污名和恐惧。临终关怀对艾滋病患者父母的支持聚焦于内疚和羞耻问题,同时鼓励认可其子女的生活。临终关怀工作者发现回报包括自我认知和洞察力方面的个人成长。