Newman-Casey Paula A, Shtein Roni M, Coleman Anne L, Herndon Leon, Lee Paul P
*Department of Ophthalmology & Visual Sciences, University of Michigan School of Medicine, Ann Arbor, MI †Department of Ophthalmology, David Geffen School of Medicine, University of California, Los Angeles, CA ‡Department of Ophthalmology, Duke University School of Medicine, Durham, NC.
J Glaucoma. 2016 Jul;25(7):e668-75. doi: 10.1097/IJG.0000000000000320.
To explore why glaucoma patients believe that glaucoma continues to cause vision loss despite the availability of effective treatment.
Nine focus groups were conducted in 3 geographically and ethnically diverse areas of the United States (Los Angeles, CA; Rochester, MN; Durham, NC) that included 56 participants, 31 with poor vision and 25 with good vision. Content analysis was used to identify important themes. Semiquantitative analysis was used to measure the frequency of each theme.
A total of 474 relevant comments were made in the 9 focus groups. Focus groups elicited 305 comments about barriers to glaucoma management including issues with adherence (30%), the doctor-patient relationship (21%), knowledge about glaucoma (19%), personal support systems (19%), and barriers to health care delivery such as cost and insurance (11%). A total of 101 comments were made regarding feelings about glaucoma and 58 comments were made regarding beliefs about disease and treatment.
These focus groups brought up many issues surrounding barriers to glaucoma treatment, perceived susceptibility to glaucoma, perceived benefits to treatment, and the emotional response to living with glaucoma. There is a need to create a more comprehensive chronic disease management approach for patients with glaucoma to address both the concrete and emotional issues identified in these focus group discussions.
探讨为何青光眼患者认为尽管有有效的治疗方法，但青光眼仍会持续导致视力丧失。
在美国3个地理和种族多样的地区（加利福尼亚州洛杉矶；明尼苏达州罗切斯特；北卡罗来纳州达勒姆）开展了9个焦点小组讨论，共有56名参与者，其中31名视力较差，25名视力较好。采用内容分析法确定重要主题。采用半定量分析法衡量每个主题的出现频率。
9个焦点小组共提出474条相关评论。焦点小组引出了305条关于青光眼治疗障碍的评论，包括依从性问题（30%）、医患关系（21%）、青光眼知识（19%）、个人支持系统（19%）以及医疗服务提供方面的障碍，如费用和保险（11%）。关于青光眼感受的评论共有101条，关于疾病和治疗信念的评论有58条。
这些焦点小组提出了许多围绕青光眼治疗障碍、青光眼易感性认知、治疗益处认知以及青光眼患者生活情感反应的问题。需要为青光眼患者创建一种更全面的慢性病管理方法，以解决这些焦点小组讨论中确定的具体和情感问题。
