Egeli Natasha A, Crooks Valorie A, Matheson Deborah, Ursa Marina, Marchant Elliott
Research Coordinator, College of Health Disciplines, University of British Columbia, Vancouver, BC, CanadaAssistant Professor, Department of Geography, Simon Fraser University 8888 University Drive, Burnaby, BC, CanadaUniversity College Professor, Chair, Psychology Department, Malaspina University College, Nanaimo, BC, CanadaMasters Student, Education Department, University of Northern BC, Prince George, BC, CanadaUniversity College Professor, Psychology Department, Malaspina University College, Nanaimo, BC, Canada.
J Clin Nurs. 2008 Nov;17(11c):362-9. doi: 10.1111/j.1365-2702.2008.02505.x.
The purpose of this research is to provide healthcare professionals with patients' views on improving care for people with fibromyalgia.
Fibromyalgia is a chronic pain syndrome that often challenges patients and healthcare professionals. Current literature suggests that the people with fibromyalgia are disempowered by their interactions with physicians. Soliciting patients' suggestions for improving care can be helpful in identifying weaknesses and strengths in current physician-patient interactions, and in improving future care.
Forty-two participants with fibromyalgia submitted written responses to open-ended questions about their experiences with physicians, and how care could be improved.
Positive interactions with physicians referenced care quality, feelings of respect and patient involvement. Negative interactions included receiving inadequate care, perceiving the physician to be uncaring and lacking knowledge of fibromyalgia.
Unlike most research suggests, the majority of patients with fibromyalgia report having positive interactions with physicians. However, suggestions for improving care are similar throughout the literature, reinforcing the need for supportive care, empathetic listening and increased knowledge of alternative treatments.
Patients' recommendations identified in this study can be implemented by nurses involved in providing supportive care and education to patients with fibromyalgia. Application of patients' recommendations may facilitate the creation of therapeutic alliances and improve patients' satisfaction with care.
本研究旨在向医疗保健专业人员提供患者对于改善纤维肌痛患者护理的看法。
纤维肌痛是一种慢性疼痛综合征，常常给患者和医疗保健专业人员带来挑战。当前文献表明，纤维肌痛患者在与医生的互动中感到无力。征求患者对于改善护理的建议有助于识别当前医患互动中的弱点和优势，并改善未来的护理。
42名纤维肌痛患者就关于他们与医生的经历以及如何改善护理的开放式问题提交了书面回复。
与医生的积极互动涉及护理质量、尊重感和患者参与度。消极互动包括接受的护理不足、认为医生冷漠以及对纤维肌痛缺乏了解。
与大多数研究所表明的不同，大多数纤维肌痛患者报告与医生有积极的互动。然而，改善护理的建议在整个文献中是相似的，这强化了提供支持性护理、共情倾听以及增加对替代治疗方法了解的必要性。
本研究中确定的患者建议可由参与为纤维肌痛患者提供支持性护理和教育的护士实施。应用患者的建议可能有助于建立治疗联盟并提高患者对护理的满意度。
