Silva Adriana Ferreira da, Issi Helena Becker, Motta Maria da Graça Corso da, Botene Daisy Zanchi de Abreu
Hospital de Clínicas de Porto Alegre, Brazil.
School of Nursing, Universidade Federal do Rio Grande do Sul, Brazil.
Rev Gaucha Enferm. 2015 Jun;36(2):56-62. doi: 10.1590/1983-1447.2015.02.46299.
To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families.
Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis.
The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned.
The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the child's care.
揭示在儿科肿瘤病房为儿童提供姑息治疗的多专业团队的认知、专业技能和实践情况。研究问题基于日常护理、促进因素和困难、专业方法的基本方面，以及姑息治疗中儿童及其家庭护理的跨学科重点。
定性、探索性和描述性研究。2013年6月至10月，通过对9名专业多学科团队成员进行半结构化访谈并进行主题分析来收集数据。
分析得出以下四个主题：姑息治疗：多专业团队的概念；个性化护理的构建；团队经历的促进因素和困难以及吸取的重要经验教训。
研究对象表明，团队也会因儿童死亡而痛苦，并且像家庭一样，朝着构建哀悼过程中的应对机制迈进。矛盾的是，团队分享知识以确定个性化治疗方案的基础，并让家庭参与这一过程，使其能够成为儿童护理的主角。
