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需要制定一份全国性协调登记计划的发展路线图。

Need for a roadmap for development of a coordinated national registry programme.

作者信息

Wilkins S, Best R L, Evans S M

机构信息

Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.

Clinical Registry Unit, Monash University, Melbourne, Victoria, Australia.

出版信息

Intern Med J. 2015 Nov;45(11):1189-92. doi: 10.1111/imj.12898.

DOI:10.1111/imj.12898
PMID:26352196
Abstract

Clinical quality registries are an overlooked and under-funded arm of clinical research in Australia. Registries are databases for patients with a particular disease, or who undergo a procedure, or use a health resource. Registries, where properly funded and universally adopted, have provided substantial benefits to the quality of healthcare and, in some cases, have had demonstrable effect in reducing costs. There is a lack of a coordinated programme for both funding and development of registries in Australia. A coordinated effort is required to address key gaps in registry coverage and ensure registries comply with appropriate technical and operating principles, and target areas where registries can add value to the health system. This will ensure that Australia is competitive with its international peers in this dynamic environment.

摘要

临床质量登记处是澳大利亚临床研究中一个被忽视且资金不足的分支。登记处是针对患有特定疾病、接受某项手术或使用某种医疗资源的患者建立的数据库。如果资金充足且被广泛采用,登记处会给医疗保健质量带来巨大益处,在某些情况下,还能在降低成本方面产生显著效果。澳大利亚在登记处的资金投入和发展方面缺乏协调一致的计划。需要做出协同努力,以填补登记覆盖方面的关键空白,并确保登记处符合适当的技术和运营原则,同时针对登记处能够为卫生系统增添价值的领域。这将确保澳大利亚在这个充满活力的环境中与国际同行保持竞争力。

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