Léon Christophe, Pin Stéphanie, Kreft-Jaïs Carmen, Arwidson Pierre
Department of Scientific Affairs, National Institute for Prevention and Health Education (INPES), St-Denis, France.
Institute for Social Sciences, Lausanne University, Lausanne, Switzerland.
J Alzheimers Dis. 2015;47(2):467-78. doi: 10.3233/JAD-142922.
The negative image surrounding AD has a substantial impact on caregiving and on those affected by the disease. Opinion surveys were created as part of the 2008-2012 Alzheimer Plan in France, which included two surveys of the general population, at the beginning and at the end.
To evaluate changes of the French population in perceptions, knowledge and beliefs over 5 years and to analyze dimensions with sociodemographics criteria and proximity with AD.
After selection by quota sampling, 2013 French people aged 18 years and over were interviewed by phone in 2008 and 2509 in 2013. Chi-squared tests were carried out to measure the changes between two periods and multivariate logistics regressions were used to assess perceptions.
People who cited AD as one of the three most serious diseases increased in 2013 (33.6% versus 26.7% in 2008; p < 0.001). There was no significant change as regards the fear, the sense of being informed and the feeling of embarrassment. Opinions "there are treatments available to improve the wellbeing of patients" and "it is normal to suffer memory loss as you get older" decreased in 2013. Close family carers had a greater sense of the seriousness, a higher risk perception, a better sense of being informed and a greater ease in the presence of a person with AD.
The results serve as indicators of the effects of the Alzheimer Plan on French society and testify to the rather weak impact of the Plan on public opinion.
围绕阿尔茨海默病(AD)的负面形象对护理工作以及该病患者产生了重大影响。作为法国2008 - 2012年阿尔茨海默病计划的一部分开展了意见调查,其中包括对普通人群在开始和结束时进行的两项调查。
评估法国民众在5年时间里在认知、知识和信念方面的变化,并根据社会人口统计学标准和与AD的亲近程度分析相关维度。
通过配额抽样选取样本后,2008年对2013名18岁及以上的法国人进行了电话访谈,2013年为2509人。进行卡方检验以衡量两个时期之间的变化,并使用多元逻辑回归来评估认知情况。
将AD列为三种最严重疾病之一的人在2013年有所增加(2013年为33.6%,2008年为26.7%;p < 0.001)。在恐惧、了解情况的感觉和尴尬感方面没有显著变化。“有治疗方法可改善患者的健康状况”以及“随着年龄增长记忆力减退是正常的”这些观点在2013年有所减少。近亲护理者对疾病严重性的认识更强,风险认知更高,了解情况的感觉更好,并且在AD患者面前更自在。
这些结果可作为阿尔茨海默病计划对法国社会影响的指标,并证明该计划对公众舆论的影响相当微弱。