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法国民众对阿尔茨海默病的认知。

Perception of Alzheimer's disease in the French population.

作者信息

Breining A, Lavallart B, Pin S, Léon C, Moulias S, Arwidson P, Beck F, Berr C, Verny M

机构信息

A. Breining, Service de Gériatrie, Groupe Hospitalier Pitié-Salpêtrière, 47-83, Bd de l'Hôpital, 75651 Paris Cedex 13, France, tel: 33 1 42 16 03 78 ; fax: 33 1 42 16 03 25, e-mail:

出版信息

J Nutr Health Aging. 2014 Apr;18(4):393-9. doi: 10.1007/s12603-014-0008-4.

Abstract

OBJECTIVE

The aim of this study was to investigate the perception, knowledge, opinions and beliefs about AD in the French population to improve care for patients with Alzheimer's disease.

DESIGN

A cross-sectional telephone survey in 2008.

SETTING

French "Alzheimer Plan 2008-2012".

PARTICIPANTS

2013 respondents, representative of the French population.

MEASUREMENTS

The respondents answered a questionnaire in which they were presented with a series of attitudinal statements about health in general and AD.

RESULTS

Main results are summarized as followed: (a) Respondents think that AD can be devastating for a family (93%). This devastating feeling prevails in the population >75 years old and in people who know patient with AD. (b) General population has a reasonable knowledge about AD, but is still unable to recognize early stages: 95% of respondents considered that difficulties to manage administrative papers and find their way back home suggest early AD. (c) 91% of the population would like to know the diagnosis if they had AD. (d) 38% of the population know or have known at least one patient within their social circle. People think that the care of AD's patient can be better but they trust in the French government to improve it.

CONCLUSION

General representation of AD is changing in a positive way and, even though AD is perceived as a calamity, people are confident that solutions will be found in the future.

摘要

目的

本研究旨在调查法国民众对阿尔茨海默病(AD)的认知、知识、观点和信念,以改善对阿尔茨海默病患者的护理。

设计

2008年的一项横断面电话调查。

背景

法国“2008 - 2012年阿尔茨海默病计划”。

参与者

2013名受访者,代表法国民众。

测量方法

受访者回答一份问卷,其中包含一系列关于总体健康和AD的态度陈述。

结果

主要结果总结如下:(a)受访者认为AD对家庭可能是毁灭性的(93%)。这种毁灭性的感觉在75岁以上人群以及认识AD患者的人群中更为普遍。(b)普通民众对AD有一定了解,但仍无法识别早期阶段:95%的受访者认为处理行政文件困难和找不到回家的路表明是AD早期。(c)91%的民众希望知道自己是否患有AD。(d)38%的民众在社交圈子中认识或曾经认识至少一名患者。人们认为对AD患者的护理可以更好,但他们相信法国政府会加以改善。

结论

对AD的总体认知正在以积极的方式改变,尽管AD被视为一场灾难,但人们相信未来会找到解决办法。

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