Shah Shawn L, Siegel Corey A
*Department of Medicine, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire; and †Inflammatory Bowel Disease Center, Section of Gastroenterology and Hepatology, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire.
Inflamm Bowel Dis. 2015 Dec;21(12):2975-8. doi: 10.1097/MIB.0000000000000575.
Inflammatory bowel disease (IBD) is a complex disease process that often requires the integration of skills from various health care providers to adequately meet the needs of patients with IBD. The medical and surgical treatment options for IBD have become more complicated and are frequently a source of angst for both the patient and provider. However, it has become more important than ever to engage patients in navigating the treatment algorithm. Although novel in the IBD world, the concept of patients' becoming more active and effective managers of their care has been well studied in other disease processes such as diabetes mellitus and mental illness. This idea of patient activation refers to a patient understanding his or her role in the care process and having the skill sets and self-reliance necessary to manage his or her own health care. Over the past decade, evidence supporting the role of patient activation in chronic illness has grown, revealing improved health outcomes, enhanced patient experiences, and lower overall costs. Patient activation can be measured, and interventions have been shown to improve levels of activation over time and influence outcomes. A focus on patient activation is very appropriate for patients with IBD because this may potentially serve as a tool for IBD providers to not only improve patient outcomes and experience but also reduce health care costs.
炎症性肠病(IBD)是一个复杂的疾病过程,通常需要整合来自不同医疗服务提供者的技能,以充分满足IBD患者的需求。IBD的药物和手术治疗选择变得更加复杂,常常令患者和医疗服务提供者都感到焦虑。然而,让患者参与治疗方案的制定比以往任何时候都更加重要。尽管在IBD领域是新事物,但患者成为其自身医疗更积极有效的管理者这一概念,在糖尿病和精神疾病等其他疾病过程中已经得到了充分研究。患者激活这一理念是指患者理解自己在医疗过程中的角色,并具备管理自身医疗保健所需的技能和自立能力。在过去十年中,支持患者激活在慢性病中作用的证据不断增加,显示出改善的健康结果、增强的患者体验以及更低的总体成本。患者激活可以被衡量,并且干预措施已被证明可以随着时间的推移提高激活水平并影响结果。关注患者激活对于IBD患者非常合适,因为这可能潜在地成为IBD医疗服务提供者的一个工具,不仅可以改善患者的结果和体验,还可以降低医疗保健成本。