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炎症性肠病青少年的治疗管理转换。

Transition of management in adolescents with IBD.

机构信息

Division of Digestive Diseases, Hepatology & Nutrition, Connecticut Children's Medical Center, 282 Washington Street, Hartford, CT 06106, USA.

出版信息

Nat Rev Gastroenterol Hepatol. 2014 Feb;11(2):109-15. doi: 10.1038/nrgastro.2013.254. Epub 2014 Jan 14.

DOI:10.1038/nrgastro.2013.254
PMID:24419396
Abstract

Transfer of care is when a patient and his or her medical records move from one provider to another at a distinct point in time. By contrast, transition of care is a gradual process of change in knowledge, attitudes and behaviour through which the adolescent can learn to assume personal responsibility for his or her health care. IBD is a prevalent disorder, often diagnosed during childhood. Because mortality of this condition is fortunately low, children diagnosed with IBD will, at some point, transition from a paediatric to adult health-care model. Paediatric and adult health-care paradigms, including IBD-specific care, are different in a number of key areas and it is becoming increasingly apparent that young adults with chronic illness often face challenging transitions, resulting in compromised physical and emotional health outcomes. In the past decade, refining the processes related to transition of care for adolescents with chronic medical conditions has gained traction as an important public health initiative. The aim of this paper is to review concepts pertinent to transition of management for adolescents and young adults with IBD, and to review the current literature and evidence supporting transitional care in paediatric IBD.

摘要

交接护理是指患者及其病历在特定时间从一个提供者转移到另一个提供者。相比之下,过渡护理是一个知识、态度和行为逐渐变化的过程,通过这个过程,青少年可以学会为自己的医疗保健承担个人责任。IBD 是一种常见的疾病,通常在儿童时期诊断。由于这种疾病的死亡率很低,因此被诊断患有 IBD 的儿童将在某个时候从儿科医疗模式过渡到成人医疗模式。儿科和成人医疗模式,包括 IBD 特定的护理,在许多关键领域都有所不同,越来越明显的是,患有慢性病的年轻人经常面临具有挑战性的过渡,导致身体和情绪健康结果受损。在过去十年中,完善与患有慢性疾病的青少年相关的过渡护理流程已成为一项重要的公共卫生举措。本文旨在回顾与 IBD 青少年管理过渡相关的概念,并回顾支持儿科 IBD 过渡护理的现有文献和证据。

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1
Transition of management in adolescents with IBD.炎症性肠病青少年的治疗管理转换。
Nat Rev Gastroenterol Hepatol. 2014 Feb;11(2):109-15. doi: 10.1038/nrgastro.2013.254. Epub 2014 Jan 14.
2
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JPGN Rep. 2025 Jun 17;6(3):227-235. doi: 10.1002/jpr3.70045. eCollection 2025 Aug.
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Shaping the future of inflammatory bowel disease: a global research agenda for better management and public health response.塑造炎症性肠病的未来:一份关于改善管理和公共卫生应对的全球研究议程。
Nat Rev Gastroenterol Hepatol. 2025 Apr 22. doi: 10.1038/s41575-025-01063-x.
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Navigating the transition: a multidisciplinary approach to inflammatory bowel disease in children.
导航过渡时期:儿童炎症性肠病的多学科方法。
Pediatr Surg Int. 2024 Aug 27;40(1):245. doi: 10.1007/s00383-024-05789-8.
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Pediatric to adult transition care in neurogastroenterology and motility: A position paper from the American Neurogastroenterology and Motility Society and European Society of Neurogastroenterology and Motility.神经胃肠病学和动力学会儿科到成人过渡护理:美国神经胃肠病学和动力学会和欧洲神经胃肠病学和动力学会的立场文件。
Neurogastroenterol Motil. 2024 Oct;36(10):e14869. doi: 10.1111/nmo.14869. Epub 2024 Jul 22.
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Recent developments in the assessment and management of inflammatory bowel disease in childhood: a narrative review.儿童炎症性肠病评估与管理的最新进展:一篇叙述性综述。
Transl Pediatr. 2023 Oct 30;12(10):1853-1874. doi: 10.21037/tp-23-210. Epub 2023 Oct 27.
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J Adolesc Health. 2020 May;66(5):616-622. doi: 10.1016/j.jadohealth.2020.01.009. Epub 2020 Feb 26.
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