Hadizadeh-Talasaz Fatemeh, Roudsari Robab Latifnejad, Simbar Masoumeh
a Department of Midwifery , School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences , Tehran , Iran.
b Research Centre for Patient Safety, Department of Midwifery , School of Nursing and Midwifery, Mashhad University of Medical Sciences , Mashhad , Iran.
Hum Fertil (Camb). 2015;18(4):265-75. doi: 10.3109/14647273.2015.1076579. Epub 2015 Oct 1.
Controversy surrounding disclosure among the recipients of assisted reproductive donation procedures is escalating worldwide, but little research has been conducted in this topic. The purpose of this qualitative study was to explore the experiences of infertile couples undergoing assisted reproductive donation procedures. In this exploratory qualitative study, 32 patients (nine couples and 14 women) who were candidates to use donor eggs, donor embryos or surrogacy, and 5 members of infertility treatment team including gynaecologists, midwives and psychologist (total 37) were purposively selected from the Montaserieh Infertility Research Centre at Mashhad, Iran in 2012 and interviewed using a semi-structured in-depth method. Data were analysed using conventional qualitative content analysis with MAXqda software. One overarching theme, entitled 'experiencing uncertainty surrounding the disclosure to others' was identified from the data. This theme contained two subthemes including 'Couples' decisions to not disclose to others' and 'Couples' decisions to disclose to others'. Five categories formed the first subtheme, and the second subtheme emerged from four categories which are discussed in this paper. The main reason for secrecy was concern over societal negative views about assisted reproductive donation procedures. This worry deprived the couples from support from family and friends and as a result requires them to tolerate psychological pressure when using such procedures.
在全球范围内，围绕辅助生殖捐赠程序接受者之间信息披露的争议日益升级，但针对这一主题的研究却很少。这项定性研究的目的是探索接受辅助生殖捐赠程序的不孕夫妇的经历。在这项探索性定性研究中，2012年从伊朗马什哈德的蒙塔泽里耶不孕研究中心有目的地选取了32名患者（9对夫妇和14名女性），他们是使用捐赠卵子、捐赠胚胎或代孕的候选者，以及5名不孕治疗团队成员，包括妇科医生、助产士和心理学家（共37人），并采用半结构化深度访谈法进行了访谈。使用MAXqda软件通过常规定性内容分析法对数据进行了分析。从数据中确定了一个总体主题，即“在向他人披露信息时体验到不确定性”。这个主题包含两个子主题，分别是“夫妇决定不向他人披露”和“夫妇决定向他人披露”。五个类别构成了第一个子主题，第二个子主题则源于四个类别，本文将对此进行讨论。保密的主要原因是担心社会对辅助生殖捐赠程序持负面看法。这种担忧使夫妇们得不到家人和朋友的支持，结果导致他们在使用此类程序时需要承受心理压力。
