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患有多发性硬化症的女性的失业问题:应对方式、感知压力及工作场所支持的作用。

Unemployment among women with multiple sclerosis: the role of coping and perceived stress and support in the workplace.

作者信息

Strober L B, Arnett P A

机构信息

a Kessler Foundation , West Orange, NJ , USA.

b Department of Physical Medicine & Rehabilitation , State University of New Jersey - New Jersey Medical School , Newark , NJ , USA.

出版信息

Psychol Health Med. 2016 Jun;21(4):496-504. doi: 10.1080/13548506.2015.1093645. Epub 2015 Oct 12.

Abstract

Unemployment is high among individuals with multiple sclerosis (MS). Certain disease variables and demographics have been found to distinguish employed and unemployed individuals. However, these variables only account for 14-20% of the variance. Other factors, such as coping, perceived stress and social support, in the workforce have been proposed, but not yet fully examined. The purpose of the present investigation was to examine the role of known factors associated with unemployment in MS, as well as coping and perceived work stress and social support. Sixty-eight women with MS were asked about their employment status and reasons for leaving. They completed a comprehensive assessment including measures of cognition, disease symptoms, psychological functioning, coping and stress. Consistent with previous findings, certain disease and demographic variables were associated with being unemployed. In particular, women who left work due to their MS were found to be older, had a longer disease duration and progressive course, reported greater disability and fatigue, and performed worse on a cognitive measure. However, we also found that coping style distinguished those who were employed from those who left work due to their MS. In particular, those who left work reported utilizing maladaptive coping mechanisms such as behavioral disengagement and substance use. With regard to perceived work stress and support, individuals who were employed reported that job security and fellow co-workers were more of an uplift than a hassle in their lives, suggesting some benefit in employment. These findings suggest that further consideration be given to role of coping and perception of the benefit of employment among individuals with MS when making recommendations regarding work decisions.

摘要

多发性硬化症(MS)患者的失业率很高。已发现某些疾病变量和人口统计学特征能够区分就业和失业的患者。然而,这些变量仅能解释14%-20%的差异。有人提出了劳动力队伍中的其他因素,如应对方式、感知压力和社会支持,但尚未得到充分研究。本调查的目的是研究与MS患者失业相关的已知因素的作用,以及应对方式、感知工作压力和社会支持。68名患有MS的女性被问及她们的就业状况和离职原因。她们完成了一项全面评估,包括认知、疾病症状、心理功能、应对方式和压力等方面的测量。与先前的研究结果一致,某些疾病和人口统计学变量与失业有关。特别是,因MS而离职的女性年龄较大,病程较长且呈进展性,报告的残疾和疲劳程度较高,并且在一项认知测试中的表现较差。然而,我们还发现应对方式能够区分就业者和因MS而离职的人。特别是,离职者报告使用了行为脱离和物质使用等适应不良的应对机制。关于感知到的工作压力和支持,就业者报告称工作保障和同事在他们的生活中更多地是一种激励而非麻烦,这表明就业有一些好处。这些发现表明,在就工作决策提出建议时,应进一步考虑MS患者的应对方式以及对就业益处的认知的作用。

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