Saunders Benjamin, Kitzinger Jenny, Kitzinger Celia
Keele University, UK.
Cardiff University, UK.
Qual Res. 2015 Oct;15(5):616-632. doi: 10.1177/1468794114550439.
Anonymising qualitative research data can be challenging, especially in highly sensitive contexts such as catastrophic brain injury and end-of-life decision-making. Using examples from in-depth interviews with family members of people in vegetative and minimally conscious states, this article discusses the issues we faced in trying to maximise participant anonymity alongside maintaining the integrity of our data. We discuss how we developed elaborate, context-sensitive strategies to try to preserve the richness of the interview material wherever possible while also protecting participants. This discussion of the practical and ethical details of anonymising is designed to add to the largely theoretical literature on this topic and to be of illustrative use to other researchers confronting similar dilemmas.
对定性研究数据进行匿名化处理可能具有挑战性,尤其是在诸如灾难性脑损伤和临终决策等高度敏感的背景下。本文以对处于植物人和微意识状态者的家庭成员进行的深度访谈为例,讨论了我们在试图最大限度地保护参与者匿名性同时保持数据完整性时所面临的问题。我们讨论了如何制定精心设计的、针对具体情境的策略,尽可能在保护参与者的同时保留访谈材料的丰富性。对匿名化实际操作和伦理细节的讨论旨在补充关于该主题的大量理论文献,并为面临类似困境的其他研究人员提供示例。