Macpherson Rob, Pesola Francesca, Leamy Mary, Bird Victoria, Le Boutillier Clair, Williams Julie, Slade Mike
2gether NHS Foundation Trust, Gloucestershire, England, United Kingdom.
King's College London, Institute of Psychiatry, Psychology & Neuroscience, London, England, United Kingdom.
Schizophr Res. 2016 Aug;175(1-3):142-147. doi: 10.1016/j.schres.2015.10.031. Epub 2015 Oct 31.
Little is known about the empirical relationship between clinical and personal recovery.
To examine whether there are separate constructs of clinical recovery and personal recovery dimensions of outcome, how they change over time and how they can be assessed.
Standardised outcome measures were administered at baseline and one-year follow-up to participants in the REFOCUS Trial (ISRCTN02507940). An exploratory factor analysis was conducted and a confirmatory factor analysis assessed change across time.
We identified three factors: patient-rated personal recovery, patient-rated clinical recovery and staff-rated clinical recovery. Only the personal recovery factor improved after one year. HHI, CANSAS-P and HoNOS were the best measures for research and practice.
The identification of three rather than two factors was unexpected. Our findings support the value of concurrently assessing staff and patient perceptions of outcome. Only the personal recovery factor changed over time, this desynchrony between clinical and recovery outcomes providing empirical evidence that clinical recovery and personal recovery are not the same. We did not find evidence of a trade-off between clinical recovery and personal recovery outcomes. Optimal assessment based on our data would involve assessment of hope, social disability and patient-rated unmet need.
关于临床康复与个人康复之间的实证关系,人们了解甚少。
探讨结果的临床康复维度与个人康复维度是否为不同的结构,它们如何随时间变化以及如何进行评估。
对REFOCUS试验(ISRCTN02507940)的参与者在基线和一年随访时进行标准化结局测量。进行探索性因素分析,并通过验证性因素分析评估随时间的变化。
我们识别出三个因素:患者自评的个人康复、患者自评的临床康复和工作人员评定的临床康复。仅个人康复因素在一年后有所改善。HHI、CANSAS-P和HoNOS是研究和实践的最佳测量指标。
识别出三个而非两个因素出乎意料。我们的研究结果支持同时评估工作人员和患者对结果的看法的价值。仅个人康复因素随时间变化,临床康复与个人康复结果之间的这种不同步为临床康复和个人康复并非同一回事提供了实证证据。我们未发现临床康复与个人康复结果之间存在权衡的证据。基于我们的数据,最佳评估应包括对希望、社会残疾和患者自评的未满足需求的评估。