Jörgensen Sophie, Iwarsson Susanne, Norin Lizette, Lexell Jan
Department of Health Sciences, PO Box 157, Lund University, SE-221 00 Lund, Sweden; and Department of Neurology and Rehabilitation Medicine, Skåne University Hospital, Lund, Sweden(∗).
Department of Health Sciences, Lund University, Lund, Sweden(†).
PM R. 2016 Jul;8(7):667-77. doi: 10.1016/j.pmrj.2015.10.014. Epub 2015 Nov 11.
Advances in acute treatment, physiatric care, and rehabilitation have improved survival greatly after spinal cord injury (SCI) and increased longevity. This has led to a need for an in-depth understanding of factors associated with healthy aging in people with long-term SCI.
To present the methodology and initial results of the Swedish Aging with Spinal Cord Injury Study, a longitudinal cohort survey targeting older adults with long-term SCI.
Cross-sectional cohort study.
Home and community settings.
People aged 50 years or older with SCI for at least 10 years.
Data were collected through interviews and assessments during home visits and from the participants' medical records.
Study-specific protocol with custom-designed questions, and validated generic and SCI-specific assessment tools focusing on functioning, disability, health, well-being, lifestyle, and personal and environmental factors.
Of 795 potential participants, 184 matched the inclusion criteria and the final sample comprised 123 participants (67% response rate; 36 women and 87 men, mean age 63 ± 9 years, mean time since injury 24 ± 12 years). Traumatic SCI accounted for 62%, and 31% had sustained a complete SCI. A majority was married or had a partner, and used some form of assistance and/or mobility device. Thirty-five percent were working full-time or part-time. Based on the American Spinal Injury Association Impairment Scale (AIS), 3 groups of SCI severity were formed. There were no significant differences in chronological age, marital status, or vocational situation between the tetraplegia AIS A-C group (n = 22), the paraplegia AIS A-C group (n = 41), and the all AIS D group (n = 60). Participants in the all AIS D group were significantly older at injury, had a shorter time since injury, and were less likely to use mobility devices compared with the other 2 groups.
These baseline data of the Swedish Aging with Spinal Cord Injury Study provide a description of older adults with long-term SCI. Forthcoming studies and subsequent follow-ups will generate new insights into factors that promote healthy aging, minimize disability and enhance participation, quality of life, and life satisfaction in people aging with long-term SCI.
急性治疗、物理医学护理及康复方面的进展极大地提高了脊髓损伤（SCI）后的生存率并延长了寿命。这使得有必要深入了解与长期脊髓损伤患者健康老龄化相关的因素。
介绍瑞典脊髓损伤老龄化研究的方法和初步结果，这是一项针对长期脊髓损伤老年人的纵向队列调查。
横断面队列研究。
家庭和社区环境。
年龄在50岁及以上且脊髓损伤至少10年的人群。
通过家访期间的访谈和评估以及参与者的病历收集数据。
采用专门设计问题的特定研究方案，以及经过验证的通用和脊髓损伤特异性评估工具，重点关注功能、残疾、健康、幸福感、生活方式以及个人和环境因素。
在795名潜在参与者中，184名符合纳入标准，最终样本包括123名参与者（应答率67%；36名女性和87名男性，平均年龄63±9岁，平均受伤时间24±12年）。创伤性脊髓损伤占62%，31%为完全性脊髓损伤。大多数人已婚或有伴侣，并且使用某种形式的辅助工具和/或移动设备。35%的人全职或兼职工作。根据美国脊髓损伤协会损伤量表（AIS），形成了3组脊髓损伤严重程度。四肢瘫AIS A - C组（n = 22）、截瘫AIS A - C组（n = 41）和所有AIS D组（n = 60）在实际年龄、婚姻状况或职业情况方面无显著差异。与其他两组相比，所有AIS D组的参与者受伤时年龄更大，受伤时间更短，使用移动设备的可能性更小。
瑞典脊髓损伤老龄化研究的这些基线数据描述了长期脊髓损伤的老年人。即将开展的研究和后续随访将为促进健康老龄化、最大限度减少残疾以及提高长期脊髓损伤老年人的参与度、生活质量和生活满意度的因素带来新的见解。
