Lubotzky Franchelle, Butow Phyllis, Nattress Kathryn, Hunt Caroline, Carroll Susan, Comensoli Andrew, Philp Shannon, Juraskova Ilona
School of Psychology, The University of Sydney, Sydney, NSW, Australia.
Centre for Medical Psychology and Evidence-based Decision-making (CeMPED), University of Sydney, Sydney, NSW, Australia.
Health Expect. 2016 Dec;19(6):1290-1301. doi: 10.1111/hex.12424. Epub 2015 Nov 9.
This pilot study aimed to obtain feedback on the feasibility, safety and acceptability of a psychosexual rehabilitation booklet developed for women undergoing pelvic radiation therapy (PRT) and to explore women's sexual, informational and supportive care needs post-PRT rehabilitation.
Twenty women treated with PRT for gynaecological or anorectal cancer within the last 5 years, who had received vaginal dilators, provided feedback on the format, content and utility of the booklet and discussed their post-treatment information needs, via a semi-structured phone interview. Women completed standardized (HADS, IES-R) and study-specific scales to characterize psychological status of the sample and to assess participants' booklet knowledge and feedback, respectively.
The booklet was perceived as very helpful, informative and not distressing, providing additional information to that discussed with clinicians. After reading the booklet, women had good understanding of strategies to reduce the sexual impact of PRT. Many women reported that discussion of sexuality was often avoided during consultations, despite them experiencing distressing sexual experiences and difficulties post-PRT.
This novel resource which addresses an important component of post-pelvic radiation care appears acceptable and highly valued. Findings have highlighted a need for sexual health communication training for clinicians who treat this population so that they can initiate conversations about vaginal health and sexual health in an informed and comfortable manner. The impact of the revised booklet on psychosexual and clinical outcomes is being evaluated in a multicentre RCT.
本试点研究旨在获取关于为接受盆腔放射治疗（PRT）的女性开发的性心理康复手册的可行性、安全性和可接受性的反馈，并探讨女性在PRT康复后的性、信息和支持性护理需求。
对过去5年内因妇科或肛肠癌接受PRT治疗且已使用阴道扩张器的20名女性，通过半结构化电话访谈，就手册的形式、内容和实用性提供反馈，并讨论她们治疗后的信息需求。女性完成标准化量表（医院焦虑抑郁量表、创伤后应激障碍自评量表）和特定研究量表，分别用于描述样本的心理状态以及评估参与者对手册的了解程度和反馈。
该手册被认为非常有帮助、信息丰富且不令人苦恼，提供了与临床医生讨论内容之外的额外信息。阅读手册后，女性对减少PRT性影响的策略有了很好的理解。许多女性报告称，尽管她们在PRT后经历了令人苦恼的性经历和困难，但在咨询过程中，性方面的讨论往往被回避。
这本涉及盆腔放疗后护理重要组成部分的新颖资源似乎是可接受且备受重视的。研究结果凸显了对治疗该人群的临床医生进行性健康沟通培训的必要性，以便他们能够以明智且自在的方式开启关于阴道健康和性健康的对话。修订后的手册对性心理和临床结果的影响正在一项多中心随机对照试验中进行评估。
