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《生活质量指数-脊髓损伤版》的西班牙语改编版。

Spanish adaptation of the Quality of Life Index-Spinal Cord Injury version.

作者信息

Kovacs F M, Barriga A, Royuela A, Seco J, Zamora J

机构信息

Research Department, Spanish Back Pain Research Nework, Kovacs Foundation, Palma de Mallorca, Spain.

Spanish Back Pain Research Network, Palma de Mallorca, Spain.

出版信息

Spinal Cord. 2016 Oct;54(10):895-900. doi: 10.1038/sc.2015.200. Epub 2015 Nov 17.

Abstract

STUDY DESIGN

A cross-sectional, validation study.

OBJECTIVES

To (a) develop the Spanish version of the Quality of Life Index-Spinal Cord Injury version (SV-QLI/SCI) and (b) assess its psychometric characteristics among permanent wheelchair users and specifically among those with SCI.

SETTING

Associations of wheelchair users in Mallorca (Spain).

METHODS

Two forward and backward translations of the QLI/SCI into Spanish were carried out separately. Seventy-seven subjects were randomly selected among the members of the associations. They completed the SV-QLI/SCI and validated instruments to measure depression and spinal pain upon recruitment and 14 days later. Assessments included comprehensibility, reproducibility, floor and ceiling effects and correlations between quality of life, pain and depression (Spearman's correlation coefficient). Analyses were repeated excluding data from subjects without SCI.

RESULTS

Three items of the SV-QLI/SCI required rephrasing. Reproducibility was 'almost perfect' for the entire questionnaire and its 'Health and functioning' subscale, 'substantial' for the 'Social and economic' and 'Family' subscales and 'moderate' for the 'Psychological/spiritual' subscale. Floor effect was not observed, and only for the 'Family' subscale >3% of the subjects reached the maximum possible score. The correlation between quality of life and depression was the strongest (r=-0.628). Results were virtually identical in the subsample with SCI.

CONCLUSION

These results support the use of the SV-QLI/SCI among Spanish-speaking wheelchair users.

摘要

研究设计

一项横断面验证性研究。

目的

(a) 编制生活质量指数脊髓损伤版西班牙语版本(SV-QLI/SCI),(b) 评估其在永久性轮椅使用者中,尤其是脊髓损伤患者中的心理测量学特征。

研究地点

西班牙马略卡岛的轮椅使用者协会。

方法

对QLI/SCI进行了两次独立的正向和反向西班牙语翻译。从协会成员中随机选取77名受试者。他们在招募时和14天后完成了SV-QLI/SCI以及用于测量抑郁和脊柱疼痛的验证工具。评估包括可理解性、可重复性、地板效应和天花板效应,以及生活质量、疼痛和抑郁之间的相关性(斯皮尔曼相关系数)。排除无脊髓损伤受试者的数据后重复进行分析。

结果

SV-QLI/SCI的三个项目需要重新措辞。整个问卷及其“健康与功能”子量表的可重复性“几乎完美”,“社会与经济”和“家庭”子量表的可重复性“较好 ”,“心理/精神”子量表的可重复性“中等”。未观察到地板效应,仅“家庭”子量表中超过3%的受试者达到了最高分。生活质量与抑郁之间的相关性最强(r=-0.628)。在脊髓损伤亚组中的结果几乎相同。

结论

这些结果支持在说西班牙语的轮椅使用者中使用SV-QLI/SCI。

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