死后数据捐赠：防止医学研究数据浪费的一项提议。
Data donation after death: A proposal to prevent the waste of medical research data.
作者信息
Shaw David M, Gross Juliane V, Erren Thomas C
机构信息
Institute for Biomedical Ethics, University of Basel, Basel, Switzerland.
Institute and Policlinic for Occupational Medicine, Environmental Medicine and Prevention Research, University Hospital of Cologne, Cologne, Germany.
出版信息
EMBO Rep. 2016 Jan;17(1):14-7. doi: 10.15252/embr.201541802. Epub 2015 Dec 10.
Abstract
Biological data from deceased persons could be a rich resource for research, but is difficult to use owing to privacy and consent concerns. A Data Donation Card and registry would enable people to contribute their medical data to future research, even after their death. [Image: see text]
摘要
来自逝者的生物数据可能是丰富的研究资源，但由于隐私和同意方面的问题而难以利用。数据捐赠卡和登记处将使人们能够将自己的医疗数据贡献给未来的研究，即使是在他们去世之后。[图片：见正文]
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