一个痛苦且无尽的故事：老年女性骨质疏松性椎体压缩骨折的生活经历
A painful, never ending story: older women's experiences of living with an osteoporotic vertebral compression fracture.
作者信息
Svensson H K, Olofsson E H, Karlsson J, Hansson T, Olsson L-E
机构信息
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, PO Box 457, SE 405 30, Gothenburg, Sweden.
Gothenburg Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
出版信息
Osteoporos Int. 2016 May;27(5):1729-36. doi: 10.1007/s00198-015-3445-y. Epub 2015 Dec 11.
UNLABELLED
Vertebral compression fractures (VCF) cause pain and decreased physical ability, with no known well-established treatment. The aim of this study was to illuminate the experience of living with a VCF. The results show that fear and concerns are a major part of daily life. The women's initial contact with health-care providers should focus on making them feel acknowledged by offering person-centered and tailored support.
INTRODUCTION
In the past decade, osteoporotic-related fractures have become an increasingly common and costly public health problem worldwide. Vertebral compression fracture (VCF) is the second most common osteoporotic fracture, and patients with VCF describe an abrupt descent into disability, with a subsequent desire to regain independence in everyday life; however, little is known of their situation. The aim of this study was to illuminate the lived experience of women with an osteoporotic VCF.
METHODS
Ten women were interviewed during 2012-2013, starting with an open-ended question: could you tell me what it is like to live with a vertebral compression fracture? The verbatim transcribed interviews were analyzed using a phenomenological hermeneutical approach.
RESULTS
The narrative provided descriptions of living in turmoil and chaos, unable to find stability in their life with little improvement regarding pain and physical function. Shifts from periods of constant pain to periods of fear of constant pain created a loss of confidence and an increased sense of confinement. The structural analysis revealed fear and concerns as the most prominent experience building on five themes: struggling to understand a deceiving body, breakthrough pain fueling fear, fearing a trajectory into isolation, concerns of dependency, and fearing an uncertain future.
CONCLUSIONS
Until researchers find a successful prevention or medical/surgical treatment for osteoporotic VCFs, health-care providers and society abandon these women to remain in a painful and never ending story.
未标注
椎体压缩性骨折（VCF）会导致疼痛并降低身体活动能力，目前尚无公认的成熟治疗方法。本研究旨在阐明患有椎体压缩性骨折的生活体验。结果表明，恐惧和担忧是日常生活的主要部分。女性与医疗保健提供者的初次接触应侧重于通过提供以人为本的个性化支持，让她们感到被认可。
引言
在过去十年中，骨质疏松相关骨折已成为全球范围内日益常见且代价高昂的公共卫生问题。椎体压缩性骨折（VCF）是第二常见的骨质疏松性骨折，患有椎体压缩性骨折的患者描述自己突然陷入残疾状态，随后渴望在日常生活中重新获得独立；然而，人们对他们的情况知之甚少。本研究旨在阐明患有骨质疏松性椎体压缩性骨折的女性的生活体验。
方法
2012年至2013年期间，对10名女性进行了访谈，起始问题为开放式：你能告诉我患有椎体压缩性骨折的生活是什么样的吗？采用现象学诠释学方法对逐字转录的访谈进行分析。
结果
访谈叙述描述了生活在混乱和无序之中，在疼痛和身体功能几乎没有改善的情况下，无法在生活中找到稳定感。从持续疼痛期到对持续疼痛的恐惧期的转变，导致了信心丧失和禁锢感增强。结构分析表明，恐惧和担忧是基于五个主题的最突出体验：努力理解欺骗人的身体、突破性疼痛加剧恐惧、害怕陷入孤立、对依赖的担忧以及对不确定未来的恐惧。
结论
在研究人员找到针对骨质疏松性椎体压缩性骨折的成功预防或医疗/手术治疗方法之前，医疗保健提供者和社会让这些女性继续留在痛苦且无尽的困境中。
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