了解中风幸存者及非正式护理人员对初级保健和社区卫生服务的体验与需求——定性文献的系统综述：方案
Understanding stroke survivors' and informal carers' experiences of and need for primary care and community health services--a systematic review of the qualitative literature: protocol.
作者信息
Aziz N A, Pindus D M, Mullis R, Walter F M, Mant J
机构信息
Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK Department of Family Medicine, Faculty of Medicine, UKM Medical Centre, Kuala Lumpur, Malaysia.
Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
出版信息
BMJ Open. 2016 Jan 6;6(1):e009244. doi: 10.1136/bmjopen-2015-009244.
INTRODUCTION
Despite the rising prevalence of stroke, no comprehensive model of postacute stroke care exists. Research on stroke has focused on acute care and early supported discharge, with less attention dedicated to longer term support in the community. Likewise, relatively little research has focused on long-term support for informal carers. This review aims to synthesise and appraise extant qualitative evidence on: (1) long-term healthcare needs of stroke survivors and informal carers, and (2) their experiences of primary care and community health services. The review will inform the development of a primary care model for stroke survivors and informal carers.
METHODS AND ANALYSIS
We will systematically search 4 databases: MEDLINE, EMBASE, PsycINFO and CINAHL for published qualitative evidence on the needs and experiences of stroke survivors and informal carers of postacute care delivered by primary care and community health services. Additional searches of reference lists and citation indices will be conducted. The quality of articles will be assessed by 2 independent reviewers using a Critical Appraisal Skills Programme (CASP) checklist. Disagreements will be resolved through discussion or third party adjudication. Meta-ethnography will be used to synthesise the literature based on first-order, second-order and third-order constructs. We will construct a theoretical model of stroke survivors' and informal carers' experiences of primary care and community health services.
ETHICS AND DISSEMINATION
The results of the systematic review will be disseminated via publication in a peer-reviewed journal and presented at a relevant conference. The study does not require ethical approval as no patient identifiable data will be used.
引言
尽管中风的患病率不断上升，但尚无全面的急性中风后护理模式。中风研究主要集中在急性护理和早期支持出院方面，而对社区中长期支持的关注较少。同样，针对非正式护理人员长期支持的研究也相对较少。本综述旨在综合和评估现有关于以下方面的定性证据：（1）中风幸存者和非正式护理人员的长期医疗保健需求，以及（2）他们在初级保健和社区卫生服务方面的经历。该综述将为中风幸存者和非正式护理人员的初级保健模式的发展发展提供参考。
方法与分析
我们将系统地检索4个数据库：MEDLINE、EMBASE、PsycINFO和CINAHL，以获取关于中风幸存者和初级保健及社区卫生服务提供的急性后期护理的非正式护理人员的需求和经历的已发表定性证据。还将对参考文献列表和引文索引进行额外检索。文章质量将由2名独立评审员使用批判性评估技能计划（CASP）清单进行评估。分歧将通过讨论或第三方裁决解决。元民族志将用于基于一阶、二阶和三阶结构综合文献。我们将构建一个中风幸存者和非正式护理人员在初级保健和社区卫生服务方面经历的理论模型。
伦理与传播
系统评价的结果将通过在同行评审期刊上发表并在相关会议上展示的方式进行传播。由于不会使用任何可识别患者的数据，因此该研究无需伦理批准。
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